Tags: bag, burning, chronic, drugs, health, medications, men, red, scrotum, syndrome

Chronic, Red, Burning Scrotum

On Health & Drugs & Medications » Men's Health

147,410 words with 145 Comments; publish: Tue, 18 Dec 2007 04:03:00 GMT; (900250.00, « »)

I'm looking for others with a chronic, red, burning scrotum problem -- often called "red scrotum syndrome" or "red bag syndrome". I have had this for over a year and it is significantly affecting my life. I know there are others out there with this condition who are frustrated, and I want to try to put together a forum where we can share ideas and see if we can figure out some kind of resolution. I have been to a number of doctors about my case and most of them are of little help. Is there anyone out there who has ever gotten rid of this condition? Does it eventuallly go away by itself?

Dermatologists insist this condition is not caused by an infection, but I am convinced that they are 100% wrong in this assertion. The most distinctive characteristic of my case is that the redness has had the exact same boundary the entire time and the boundary follows the boundary of hair follicles EXACTLY. This is characteristic of some type of bacterial infection. Irritation would not have such a well defined boundary for so long and coincidentally follow the hair follicles so closely. Have others noticed this about their case? I have a theory about the type of infection that causes this, and luckily it is not contagious. Unluckily, it is a type of infection that would be extremely difficult to resolve with the medications currently available on the market.

Anyway, hopefully we can get some more posts on here and bounce some ideas around. If you have this condition, please feel free to share details about your case (patterns, how long it has lasted, theories about the cause, anything that has helped with the symptoms, etc). Maybe we can get this miserable condition figured out.

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  • 145 Comments
    • I have the same problem. I have seen two Dermatologist in Pinehurst, NC. I have been refered to Duke Diagnostic Clinic with an appointment on 11/15. Will let you know what I find out.
      #1; Tue, 18 Dec 2007 09:38:00 GMT
    • I am no doctor, but I think it is a bacterial infection. It stunk like sometime a dog would love to roll in.

      Wash it a couple of time a day with anti-bacterial soap, & rise well.

      After about a week wipe it with a diluted alcohol every other day for a week. Then when it quit burning use full strength alcohol every other day.

      That worked for me.

      #2; Tue, 18 Dec 2007 09:40:00 GMT
    • JinL -- How long did it take for yours to resolve? I have been using strong antibacterial agents like chlorhexidine with no success.

      clwilson -- definitely let me know what you find out. My theory is that this is a bacterial "biofilm" infection (probably Staph). I think it happens when you leave vaginal fluid on your scrotum overnight. Bacteria in a fluid environment are able to create these films. The bad news is these films are highly resistant to all kinds of antibiotics/antiseptics. If you want, run this theory by the docs at Duke and see what they say.

      #3; Tue, 18 Dec 2007 09:41:00 GMT
    • About a week with the soap, then another week with 1/2 strength alcohol, the full strength alcohol every week.
      #4; Tue, 18 Dec 2007 09:42:00 GMT
    • jamaxx1 -- it sounds like you definitely have the same thing I've got. I don't want to discourage you, but don't expect much help from the dermatologists. I'm working on some treatments, so I'll let you know if I have any success. Definitely keep checking back. In the meantime, cornstarch and Gold Bond are helpful.
      #5; Tue, 18 Dec 2007 09:43:00 GMT
    • sq10680, I think you might be on to something. I developed this exact same problem about 3 days after unprotected sex and not cleaning up. Damn annoying as I'm sure you already know. I'm curious to know if you're making any progress with your self-treatment.
      #6; Tue, 18 Dec 2007 09:44:00 GMT
    • Just wanted to write back with an update. Unfortunately, I still have the problem...going on fifteen months now. I know how much this sucks so I wanted to share some of the information I've found. I've read some anecdotes of other guys getting rid of similar problems by using Gold Bond after every shower. I think the trick is to be persistent as this is not something that will clear up in a few days or even weeks. It will probably take months (if it clears up at all). What I am doing now is showering twice a day and applying Gold Bold (green bottle) liberally after drying off. I'm going to keep this up for awhile and see what happens. I started a few days ago so I'll write back about any progress.

      Something like this will sure teach you to clean up after sex...hell of a way to learn such a lesson.

      #7; Tue, 18 Dec 2007 09:45:00 GMT
    • Greetings, all.

      I've recently been to the dermatologist and diagnosed as having this "red bag syndrome", too. My condition is not painful, though it used to be sore and itchy like a bad jock itch. Now I just have a red scrotum, with a defined line right where the scrotum meets my body, which has not spread or anything like that. I've had it since like last memorial day, so what is that, ~6 months?

      I ended up at the dermatologist after trying numerous anti-fungal medications from my regular doctor, and after keeping talcum powder on me did nothing.

      The gist of what the dermatologist said, was that they don't really know exactly what causes RBS, but they pretty much know what to do a/b it. He prescribed me Alcortin, which is like an anti-bacterial, anti-fungal, and topical sterroid (for the slight inflammation/redness) all in one cream. I've been applying Alcortin twice daily regularly for a little less than a week now, and it *SEEMS* to be helping. Cross your fingers...

      Are you guys interested in hearing how it goes?

      #8; Tue, 18 Dec 2007 09:46:00 GMT
    • yik -- Thanks for the input. Definitely write back about any progress. I'd be interested to hear if the Alcortin works. Since it has some antibacterial activity it might be something that will work after awhile.

      I've been continuing with the Gold Bond after every shower and while there has been no change in the redness, the skin does seem to feel better most of the time. We'll see how it goes for awhile.

      #9; Tue, 18 Dec 2007 09:47:00 GMT
    • I have had this going on 2 1/2 years, but in my case it started on a mission trip in Mexico working in the heat, etc. I thought it was jock itch for that reason, but it has remained to the present. I suppose that the bacterian might have been introduced by the shower, environment, etc down there.

      I have gotten relief at times during beach vacations while swimming daily in salt water; none of the anti-bacterial stuff prescribed by my doctor has helped, so I eagerly await the latest from yik. I had tried Gold Bond but gave up after it seemed to inflame rather than help the situation. Sq10680, what type of Gold Bond are you using? I'll try again.

      #10; Tue, 18 Dec 2007 09:48:00 GMT
    • That's interesting how you say yours started, squire. Was there anytime when there was moisture covering your skin for an extended period of time?

      The Gold Bond is definitely worth another shot. It has provided the best symptomatic relief of anything I have tried. I'm using the extra strength body powder in the green bottle. The regular strenth is in a yellow bottle. Keep checking back...hopefully we'll find someone who has gotten rid of this.

      #11; Tue, 18 Dec 2007 09:49:00 GMT
    • Let's get to the bottom of this. I've been to at least a dozen doctors for my symptoms--going on a year and a half--which i'm sure are the same as many of yours. Burning, red, swampy scrotum continuing up to the perianal area, and under the buttocks, most noticeable while sitting. It appeared within several days of a sexual encounter--my theory is that it had something to do with the lubricant i used. I've tried prescription steroids, antifungals, antibiotics--no effect. Right now I'm using topical otc Lamisil and Gold Bond Green--it relieves much of the burning throughout the day, but nothing is going away.

      I'd like to find a doctor who WANTS to treat this. Isn't there someone who wants to do research? good grief, this is clearly something that's going around and the doctors i've been to just pass me off to someone else. and what's worse is that every doctor says something totally different: "it's excezma", "it's clearly intertrigo", "it's probably nerve damage", "I don't see anything," "It could be Red Scrotum Syndrome, but there's dispute whether RSS even exists," "it's psychosomatic..." Give me a break! I know my body--and these nimrods have no interest in figuring out what's wrong or treating me. They simply forward me from specialist to specialist then i'm back at square 1.

      Are there any doctors interested in researching this? There must be someone. I will gladly volunteer.

      also, just a general question: I've largely abstained from sex for fear of passing this on. Have any of you been able to have a normal sex life?

      and the question of the year: Has anyone gotten rid of this??

      #12; Tue, 18 Dec 2007 09:50:00 GMT
    • Hey man, I know how you feel. I tried going to doctors for awhile, but it was worthless. I've stopped going. Basically this is something that the field of Dermatology has seriously dropped the ball on for awhile, and it doesn't seem like any of them care about figuring it out.

      I wouldn't worry too much about having sex. This is not some kind of transmissible disease that all of us caught from an infected partner. We got it from temporary poor hygiene and nothing else. However, I would be careful to always clean up after sex. Any kind of moisture (vaginal fluid, etc.) left on the affected area for an extended period of time may make things worse.

      I've been using the Gold Bond Green twice a day for about a month now. The redness is still not going away, but the skin continues to feel much better most of the time.

      If anyone finds out any new info, definitely post.

      #13; Tue, 18 Dec 2007 09:51:00 GMT
    • I think I may have the same problem, but I'm not sure of the cause. I've never has unprotected sex, or not cleaned up afterwards, so that can't be it. Only thing I can think of is that sometimes pretty much everything below my waist sweats a lot when im sleeping if I have a lot of blankets on, which I usually do.

      Anyways, after having these same symptoms for about a year, I've gone to dermatologists and physicians, and gotten 2 types of pills, and at least 6 topical creams. Most of the doctors said I had "lichen simplex chronicus" or something like that. None of them have worked yet.

      Today though, I had an appointment and the doctor told me I might have this Red Scrotum Syndrome, and he prescribed me anti-depressants for it. Apparently it's supposed to help with the nerves, or something along those lines.

      I'll let you guys know if I see any improvement.

      #14; Tue, 18 Dec 2007 09:52:00 GMT
    • Mochem let me know how that goes. My dermatologist suggested the same thing if the creams etc. he prescribed had no effect.
      #15; Tue, 18 Dec 2007 09:53:00 GMT
    • I think I'm onto something...

      I found a study that suggested that the topical steroids were part of the problem, in that your body becomes addicted to them and they actually create more redness. The study also suggested that the steroids block nitric oxide from doing its part in cell repair. Which made me think--maybe I'm not producing enough nitric oxide? I've always felt that diet and circulation had something to do with the daily severity of the burning and the redness, but I've never even heard of nitric oxide before until I read this thing.

      So... i simply looked up foods that help the body create nitric oxide, and one of the top things is L-Arginine, an amino acid you can buy at GNC or a healthfood store, sold in 500mg capsules. I've stopped all topical steroid/antifungal use and been supplementing 3 a day into my diet for about a week now and the difference has been like night and day. Redness going away, the burning is going away. I'm crossing my fingers that it continues to work and its not all in my head. But I think I'm onto something!!!

      #16; Tue, 18 Dec 2007 09:54:00 GMT
    • Well so far there hasn't really been any difference at all with the pills, I wasn't so sure that they were going to do anything in the first place.

      But Larry, thanks for the info, I'm going to check that out, so maybe I won't have to go to the dermatologist AGAIN and give them more money for stuff that doesn't work.

      #17; Tue, 18 Dec 2007 09:55:00 GMT
    • Just so you can see my reasoning...

      Here's the study:

      http://209.85.165.104/search?q=cache:gubCNxELMIQJ:www.dms.moph .go.th/inderm/Journal/Clin%2520Dermatol/2003/vol21-no3-May/vol21-no3-p201.pdf+red+scrotum+syndrome&hl=en&gl=us&ct=clnk&cd=17

      [deleted]

      So, i thought, maybe NO is like the key to this whole thing. Like if the steroids are stopped, and NO is allowed to resume its normal function, healing should occur given that our bodies are producing enough NO to begin with. But what if for some reason, we're just not creating enough?

      Would anyone else care to try out the L-arginine theory? This has been the first week in a LONG time where I've felt like things were getting better.

      Thoughts? Opinions?

      #18; Tue, 18 Dec 2007 09:56:00 GMT
    • I bought some 500mg L-arginine today, to try out your idea, but I have some questions.

      The bottle says to take 1 daily, but you said that you have been taking 3 a day, and I've also read some study on it and it said "using 3 500mg a day". Did you just start taking 3 the first day, or did you gradually go up from 1? And are you taking them at morning, noon, and night, since it's 3 of them?

      #19; Tue, 18 Dec 2007 09:57:00 GMT
    • I had to shave the right-hand side of my scrotum five months ago prior to having an Angiogram. Soon after that I developed this chronic, red, burning scrotum.To cut a long story short, I eventually tried some Lamisil cream that I had previously used to cure my Athlete's Foot, and, fingers crossed, it seems to have cured the problem. Give it a try, it might work for you,too.:)
      #20; Tue, 18 Dec 2007 09:58:00 GMT
    • This is great that we are getting a lot of input here. For you guys that acquired this problem by a means other than poor hygiene, I'm curious if the boundary of your irritation closely follows the boundary of hair follicles. I wonder if we are all suffering from the same affliction, or if we have varying conditions (different underlying causes) that tend to present with the same symptoms?
      #21; Tue, 18 Dec 2007 09:59:00 GMT
    • I have a feeling that we all have different conditions with similar symptoms.

      I've been taking 3 of the 500mg L-Arginine pills a day, and although it hasn't quite been a full week, I still haven't seen any improvement whatsoever.

      And as for Lamisil and Tinactin type products, I used those for about 2 weeks and the only thing I got of it was probably the most intense burning pain on my scrotum that I've ever felt. Haha, so that obviously wasn't the right solution.

      Also, the anti-depressent pills that I've been taking for the problem hasn't helped yet either. I'm just having horrible luck with this stuff :mad:

      #22; Tue, 18 Dec 2007 10:00:00 GMT
    • Okay, so I thought the L-arginine was a breakthrough at first--it certainly did something initially. But the burning is creeping back. You haven't experienced any change at all, Mochem?
      #23; Tue, 18 Dec 2007 10:01:00 GMT
    • Unfortunately, no.

      I do, however, have another appointment scheduled with my dermatologist somewhere around February 22nd, and he said that if there is still no improvement by then, then he will give me over to this other doctor that he's been working with on this topic, who is higher up than him. So, maybe HE can help me/us.

      #24; Tue, 18 Dec 2007 10:02:00 GMT
    • Hey Folks...

      I am working on 29 months with this disease... I have an inflamed red scrotum that becomes more irritated as heat and sweat increase. I know for a fact that I got it from unprotected sexual contact (stripper). The list of medicines is long and varied but nothing will cure you.

      Z-pac, Cipro, erythramycin, cutivate, prednisone, atopiclair, mymex, zoloft, hydroxizine, zyrtec, Flucanozole, Ketocanozole, tagemat, accupunture, various supplements, powders (talc, gold bond, prescription compounds, nystop) and a a couple of Combo antifungal/steroid.

      Please take my advice...Steriods will NOT help you. Helps in the first few days, but then your scrotum will redden with a vengence. This happened to me multiple times as I tried different steroids.

      I have been to:

      General practitioner, 2 Dermos, 2 infectious diseases, rheumatologist, and urologist. I have been to one of the top dermos in the world (Jerome L. Shupack), and he was unable to help.

      Various diagnosis: Intertrigo, Red scrotum Syndrome, Fungal infection, Variant of Herpes Simplex, scrotodynia, atopic dermatitis, chronic dermatographism of the scrotum.

      Please be careful: All though I may have some type of additional infection, this disease is transmissable as my wife now has similar reddening of the skin. It was transferred from mouth to breast contact.

      My last chance is May 15, I am heading to one of the top hospitals in the world, Johns Hopkins to see there lead dermatologist who specializes in dermatological disorders as a result of infectious disease. You will have to wait a while but I will let you know if anything turns up.

      Also be thankful it is not worse for you. Over the months my entire body has become red and inflamed, as if I have chronic sunburn. My skin is irritated by my own clothes and even sitting in a chair can cause a burning sensation in my back and legs. I would not recommend sex, as I have demonstrated that it is contagious.

      If there is no resolution after that, I will finally accept my fate. I have heard of cases that have lasted 14 years and never resolved. I believe this is a life sentence friends...

      Please take care of yourselves and I will be back after my trip to Hopkins.

      #25; Tue, 18 Dec 2007 10:03:00 GMT
    • Tommy,

      What was the progression of symptoms after the initial unprotected contact with the stripper? Curious, because as all the derms / docs that I have seen reassure me that it wasn't contracted sexually eventhough it appeared within a couple weeks of unprotected sex and I have always maintain that that was the root cause.

      Thaks

      #26; Tue, 18 Dec 2007 10:04:00 GMT
    • Why are you waiting so long for the appointment with such a critical situation?

      I have been to two dermatologist, MD, Internal Doc. My Internal Doc says nothing is wrong and leave it alone. Derm gave me desonide and hydro. Other Derm gave me protopic,elidel,hydro/chlotramazole,prednisone,and amytryptaline pills, anti-depres. My symptoms are the same as posted here. Anything applied to the skin may have a degree of relief initially, but daily use starts the redness and irritation, burning sensation to increase, and use has to be stopped. I am at a loss over this. Vacations ruined, many trips to the same Doctors with no results.

      After reading your depressing post, I plan to call the University of Chicago and U of Michigan infectious disease centers to get in there.

      Has anyone tried penicillin or any other oral anti-biotics?

      #27; Tue, 18 Dec 2007 10:05:00 GMT
    • So I've finally found out what we call this red scrotum that has the reasonably obvious line where it doesn't continue to the body!

      Reasons to consider yeast?...

      I spoke a visiting doctor to our surgery the other day and he gave me lots of "soothing" creams. But he did shed some light...I mentioned that I used to get eczema on my eyelids as well and he was very quick to name some type of eczema (the name I didn't catch because doctors here rush you) that is caused by yeast. I read on another forum that someone with the red scrotum was getting sore eyelids. Many doctors have asked me about my sugar consumption.

      Many years ago I went to a derm consultant regarding acne and in particular the tiny white lumps that appeared to be part of the acne problem. He said that those lumps and the vague 'V' shape of them down my back was from yeast running down from my head. He prescribed ketoconazole shampoo for my hair and betadine surgical scrub for my face - a treatment that worked wonders over time.

      In more recent years I have been shelved as an IBS sufferer with persistent diarrhea and way too much of the flatulence to be socially acceptable :) I think I have had every possible test including coming off lactose and gluten for periods. My own research keeps leading to yeast problems.

      I have had these red balls on and off for longer than I can remember with varying levels of severity. It is never completely gone and it does seem to be linked to new attacks of diarrhea and accompanying fatigue etc.

      Very recently I get what feels like a UTI up my penis at the same time as the redness on the scrotum really flares up. Urine sample taken at the doctors showed tiny amounts of blood and proteins. Although I am a bit too young, the doctors are investigating the possibility of kidney stones atm.

      If any of my other conditions/symptoms are not something you guys are getting it could be that I am years ahead as most are recent developments, or that my desperation is leading me to make the wrong associations.

      After all this time trying every topical cream including anti-fungal I have found nothing that can really eliminate the burning redness. My instincts tell me that it is not the skin itself - it is symptomatic of an internal condition, possibly yeast related. It is a shame that this whole Candida thing is not really recognised my doctors so it is difficult to rule out.

      Have any of you been fatigued or similar when the redness is at its sorest?

      I was interested read about unprotected vaginal sex and I will pay more attention to symptoms following that. Initially I would say that my partner does have problems she associates with woman's thrush at the same time sometimes and she can also have slightly similar stomach problems having no previous history before she met me.

      Anyway I don't think what I've written is very clear :) But feel free to throw out some questions. I think it helps if as many people as possible post histories however unclear.

      PS How many other people feel there is an unpleasant smell when it flares up?

      #28; Tue, 18 Dec 2007 10:06:00 GMT
    • Hey everyone, let's organize our experiences a little, I think that might be helpful for the rest of us. If you are suffering from this, please answer the questions below and post.

      Probable Cause

      -Sexually transmitted, protected

      How Long Have You Been Living with Symptoms?

      -Two years

      Areas affected

      -Scrotum (redness, wetness, visible veins, hair follicles exaggerated)

      -Groin folds, underneath buttocks (redness, wetness, heat, burning)

      -Anal, perianal skin (redness, wetness, heat, burning)

      -Navel (tingling)

      What has provided relief?

      -Sleeping

      -Lots of sleep

      -Standing, walking

      -Gold bond (green)

      -Tolnaftate (powder)

      -Nitric oxide boosters, L-arginine

      -Showering

      -Alcohol

      -Stretching

      -The weekend

      Have symptoms changed with time?

      -The burning has reduced significantly since the first few months.

      -Redness has crept over most of scrotum.

      What makes it worse?

      -Extended periods of sitting

      -Sugar

      -Laptop on lap

      -Steroid creams

      -Too much soap

      -Tinactin aerosol spray (extreme burning)

      Do you have proof that you may have spread it to a sexual partner?

      -No

      Have you encountered a doctor genuinely interested in treating it?

      -No

      #29; Tue, 18 Dec 2007 10:07:00 GMT
    • had unprotected sex a year ago been 2 sti clinics x 3-4 times,doctors x5-6,seem 2 ave must of the same symptoms as urself tried allsorts of creams,clotrimazole,hydrocortisone,powde rs,nappy rash creams, diprobase moisturisers.i drive all day which does nt help and have to wear track bottoms,because of the redness burning sensitive skin around my penis & scrotum my bum all feels sticky sometimes,heads meltin nobody seems to know wots wrong dont wanna have sex incase i pass it on. if i leave untreated everything gets all tight and wrinkled.ps if any1 can help please let me know, next step is the dermatologists but dont know if that will help,bye
      #30; Tue, 18 Dec 2007 10:08:00 GMT
    • Good idea on the symptoms. I am new to the board and have also been diagnosed with Red Scrotum Syndrome. However, I don't believe it to be sexually transmitted as I have only had one partner and she was tested (as was I with a blood test) before we had unprotected sex (and after). In fact, when my symptoms first developed, it was while sitting in a car for a really long period of time and I had not been sexually active for months (about five to be exact, kind of pathetic I know).

      I saw two derms and an urologist (that performed a circumcision on me about 8 months earlier--I am in my mid twenties). They all kind of thought the same thing--sweat being trapped, atopic dermatitis (caused by harsh soaps and other irritants), yeast, etc. I have been prescribed just about everything--potent steroids (clobetasol) to Vaseline. They all provided a little relief but nothing long term.

      I have since been seeing a dermatologist out of Chicago at Northwestern University who is a Genital Dermatologist (quite renown in the field)--Dr. Anne Laumann is her name. Actually, the first time I went to see her, she diagnosed it right out of the gate. She believes it to be vascular. In other words, too much blood is being distributed to the Groin region (one of the more vascular regions as you can imagine)--almost like the opposite of Erectile Dysfunction where too little blood flows to the Groin region. As an aside, she thinks this might be why I had to be circumcised (blood flow to the head of penis was too much and caused a ripped--yeah it hurt like hell)

      Publications would suggest that she is right (take a look at British Journal of Dermatology, Journal of the American Academy of Dermatology, etc --go to local library to access). This would explain why sugar is an irritant (as well as other stimulants--i.e. increases blood flow).

      I am going to see the Dermatologist tomorrow; they took a chunk of skin and had it "biopsy-ed". But she thinks that we are going to be best served trying to use Beta Blockers (use to treat hypertension (high blood pressure)).

      I will let you all know how it goes, in the meantime keep up the good fight.

      How Long Have You Been Living with Symptoms?

      -One Year

      Areas affected

      -Scrotum (redness, wetness, visible veins, hair follicles exaggerated, itching)

      -Groin folds, underneath buttocks (redness, wetness, heat, burning, itching)

      -Anal, perianal skin (redness, wetness, heat, burning, itching)

      What has provided relief?

      - Vusion (a prescription used to treat diaper dermatitis)

      -Standing, walking

      -Gold bond (green)

      -Walking/exercising (helps relieve stress which in turn helps)

      -Showering

      -Non-allergenic soaps--free of chemicals (Vancecrim is a good one)

      -Blow drying after showering

      -Using Ky Jelly (during sex)

      -Lots of water

      -Whitey-tighties! They help catch sweat and keep your boys compact so they aren't loose and being pressed against something (i.e. a chair)

      -Shorts (sometimes it helps not wearing any underwear with a pair of mesh shorts)

      -Sitting on something cold (shrinks the skin--same as gold bond but doesn't have the menthol if you itch)

      -Sitting on something that provides a buffer between the scrotum and your seat

      -Sarna Ultra--an over the counter lotion with menthol (maybe not quite as good as gold bond but similar without the mess)

      Have symptoms changed with time?

      -The burning has reduced significantly since the first few months.

      -Redness has crept over most of scrotum.

      What makes it worse?

      -Extended periods of sitting in uncomfortable clothes (wool pants, dress pants--shorts aren't bad)--really any clothes that trap the scrotum which in turn warms the scrotum.

      -Sugar

      -Too much soap

      Do you have proof that you may have spread it to a sexual partner?

      -No

      Have you encountered a doctor genuinely interested in treating it?

      -Yes many (hey newbie I saw that you are out of the BK try NYU--great hospital I have heard)

      #31; Tue, 18 Dec 2007 10:09:00 GMT
    • hi all

      i have the same problem and thought i would put some input into this.

      has anyone else noticed that topical steroids thin the skin ?

      after continual use of them which yes they reduce the redness and soreness of your scrotum actually make the skin thinner.

      ive done just that and has made my balls ache like hell !

      and they still smell rotten !! anyone else done this?

      ive not noticed many people on here mention the smell,is it just me?

      the smell is not nasty just really radiant.

      i dont believe rbs is a result of vaginal discharge or bad hygene

      ive had that before where i didnt wash after sex and the redness dissapears after a few days,not 6 months !

      im now fed up of doctors and specialists telling me to try and just forget it and its all in my head. so hope we can find an answer to this problem but i am resigned to a miserable life now.

      #32; Tue, 18 Dec 2007 10:10:00 GMT
    • Got back from the Genital Dermatologist today and they had the biopsy results, it showed eczema, which I had really bad as a kid. But my rectum itches too and she looked at that and thought maybe psoriasis. She was glad she did the biopsy becuase she thinks it might not be the red scrotal syndrome. Hope this helps
      #33; Tue, 18 Dec 2007 10:11:00 GMT
    • jamaxx1 -- it sounds like you definitely have the same thing I've got. I don't want to discourage you, but don't expect much help from the dermatologists. I'm working on some treatments, so I'll let you know if I have any success. Definitely keep checking back. In the meantime, cornstarch and Gold Bond are helpful.

      what is cornflower and gold bond? where can ya buy it?

      #34; Tue, 18 Dec 2007 10:12:00 GMT
    • so hows it going with the l`arginine tablets?how many and how often do u take them?
      #35; Tue, 18 Dec 2007 10:13:00 GMT
    • Tommy,

      What was the progression of symptoms after the initial unprotected contact with the stripper? Curious, because as all the derms / docs that I have seen reassure me that it wasn't contracted sexually eventhough it appeared within a couple weeks of unprotected sex and I have always maintain that that was the root cause.

      Thaks

      My first symptoms were about 72 hours after unprotected sexual contact. These including, annoying tingling sensation in the tip of my penis, buttocks and thighs, along with a constant urge to urinate. After I went through an intense shedding of the scrotal skin, with the end result of a BRIGHT red scrotum that was very raw, sweaty, irritated, and just downright painful. These initial symtoms have graduated into a host of other health problems. I am 100 percent sure my case if from sexual contact. I have passed this virus/infection to my wife, and she has suffered generalized reddeing of the skin.

      Additionally I have had 5 IGG/IGM test for Herpes, and HIV tests over the 29 months and ALL have returned negative. This infection is clearly not picked up by convetional STD tests. It is a variant that is undetectable/unidentified at this point.

      #36; Tue, 18 Dec 2007 10:14:00 GMT
    • Why are you waiting so long for the appointment with such a critical situation?

      I have been to two dermatologist, MD, Internal Doc. My Internal Doc says nothing is wrong and leave it alone. Derm gave me desonide and hydro. Other Derm gave me protopic,elidel,hydro/chlotramazole,prednisone,and amytryptaline pills, anti-depres. My symptoms are the same as posted here. Anything applied to the skin may have a degree of relief initially, but daily use starts the redness and irritation, burning sensation to increase, and use has to be stopped. I am at a loss over this. Vacations ruined, many trips to the same Doctors with no results.

      After reading your depressing post, I plan to call the University of Chicago and U of Michigan infectious disease centers to get in there.

      Has anyone tried penicillin or any other oral anti-biotics?

      I am waiting so long because that is the only appointment he has available in the next 4 months (believe it or not). He is a world leader in dermatology, so I'm almost reassured by his unforgiving schedule. I have had this for 29 months, what is another couple??

      To continue your discussion of anti-biotics...I have been on several with no relief...However, I have heard about a two cases of red scrotum, one cause by Rosecea, and the other by a Staph infection. Both of these infections are nasty and do not clear easily. I am curious about this, as I currently have a staph infection on my chest and back that has conincided with the red scrotum. No doctor has thought of this, and I only put two and two together recently. Consequently, tetracycline has resolved at least one case of red scrotum for the case in which the red scrotum was caused by Rosecea.

      I use a compound powdered perscribed by a Dermo at NYU hospital, that feels great until a sweat if off...consequently I am powdering my scrotum 2-3 times a day. Anoying but it does provide some relief. Will check in soon and after may 15 with an update from appointment at Johns Hopkins.

      #37; Tue, 18 Dec 2007 10:15:00 GMT
    • I am new to this group as well as to this condition. In fact, I know exactly when I had first symptoms, which were intense itching on top part of scrotum last Tuesday night (2/27/07). Within a few days I am now experiencing completely red scrotum, chronic burning sensation, fabric contact hurts, etc. I have also had two additional nights of intense itching, but don't experience this symptom during the day.

      Some background: 59 YO, married, no outside sexual contact so not a factor. However, I am a very active tennis player (6-8 times per week, although not that skilled :) ). Since I often play twice a day or have a lesson followed a bit later by a match I often do not have a chance to shower between, so can often be very sweaty for several hours after playing. For example, on the Tuesday in question had a lesson at 3:30, went home to dinner without changing, then played an intense match at 6:30 pm. Didn't shower until later that night. On the other hand, this is exactly what I do most Tuesdays for the past couple of years, so no change in pattern.

      Tried cortisone first night because of the intense itch but quickly realized that cortisone is a bad idea unless you are sure that it is appropriate, since it can make other conditions worse. Started using jock anti-fungal stuff, but no improvement. Also, the symptoms don't fit jock itch. I have been using Lanacane for some pain relief. One note - last night when I had intense itching again, I found that an ice pack quickly eliminated that symptom.

      I am planning on trying to get in to a dermatologist but that will take probably take a while so I will try a couple things suggested here in the meantime, e.g., Gold Bond powder.

      One last thing - I have scleroderma, a very rare autoimmune condition. This is not at all related - I am fairly expert on my disease and this is definitely not a symptom. However, I was successful in doing research to figure out a research based treatment that has reversed this normally untreatable disease so I plan to try to to more Medline research to try to figure out more on this problem as well. Wish me luck! :)

      Sorry for the long post and thanks for the very useful discussion forum.

      #38; Tue, 18 Dec 2007 10:16:00 GMT
    • good luck hope ya get a remedy
      #39; Tue, 18 Dec 2007 10:17:00 GMT
    • I have been doing a comprehensive search of the literature on this. There are only three references in Medline, from 1997 and 1998. I can't get at the full text of the articles without paying, but the summary of one basically described the syndrome and said the condition is chronic, has unknown cause, and is generally not responsive to treatment. Not a very encouraging summary.

      I am meeting with my dermatologist on Thursday. I am going to be pushing for a trial with antibiotics since it is clear that steroids and anti-fungals are useless. Actually the pattern of spread of the redness was very consistent with a skin infection. It took two days to spread over the entire scrotum which wouldn't make much sense with a contact dermatitis reaction, for example. I will post after I see the dermatologist.

      #40; Tue, 18 Dec 2007 10:18:00 GMT
    • Before more people with jock itch flood the board, I'd like to point out that I have never experienced any itching with this.
      #41; Tue, 18 Dec 2007 10:19:00 GMT
    • Hey Folks...

      I am working on 29 months with this disease... I have an inflamed red scrotum that becomes more irritated as heat and sweat increase. I know for a fact that I got it from unprotected sexual contact (stripper). The list of medicines is long and varied but nothing will cure you.

      Z-pac, Cipro, erythramycin, cutivate, prednisone, atopiclair, mymex, zoloft, hydroxizine, zyrtec, Flucanozole, Ketocanozole, tagemat, accupunture, various supplements, powders (talc, gold bond, prescription compounds, nystop) and a a couple of Combo antifungal/steroid.

      Please take my advice...Steriods will NOT help you. Helps in the first few days, but then your scrotum will redden with a vengence. This happened to me multiple times as I tried different steroids.

      I have been to:

      General practitioner, 2 Dermos, 2 infectious diseases, rheumatologist, and urologist. I have been to one of the top dermos in the world (Jerome L. Shupack), and he was unable to help.

      Various diagnosis: Intertrigo, Red scrotum Syndrome, Fungal infection, Variant of Herpes Simplex, scrotodynia, atopic dermatitis, chronic dermatographism of the scrotum.

      Please be careful: All though I may have some type of additional infection, this disease is transmissable as my wife now has similar reddening of the skin. It was transferred from mouth to breast contact.

      My last chance is May 15, I am heading to one of the top hospitals in the world, Johns Hopkins to see there lead dermatologist who specializes in dermatological disorders as a result of infectious disease. You will have to wait a while but I will let you know if anything turns up.

      Also be thankful it is not worse for you. Over the months my entire body has become red and inflamed, as if I have chronic sunburn. My skin is irritated by my own clothes and even sitting in a chair can cause a burning sensation in my back and legs. I would not recommend sex, as I have demonstrated that it is contagious.

      If there is no resolution after that, I will finally accept my fate. I have heard of cases that have lasted 14 years and never resolved. I believe this is a life sentence friends...

      Please take care of yourselves and I will be back after my trip to Hopkins.

      goodluck mate hope ya get help for this disaster

      #42; Tue, 18 Dec 2007 10:20:00 GMT
    • I saw the dermatologist last Thursday. I had done a lot of research on this and was prepared to discuss, but he wouldn't listen to me at all. Immediately DXed as contact dermatitis and said steriods would cure it, which of course isn't working at all. I did get him to do a biopsy (that hurts!) but results won't be back for another week. I will NOT see him again. I found another dermatologist that may be less arrogant, but probably won't see her for a at least another week or two.

      One question though. I notice that it is not as bad in the morning and gets worse as the day goes on. Do others experience this as well?

      #43; Tue, 18 Dec 2007 10:21:00 GMT
    • I saw the dermatologist last Thursday. I had done a lot of research on this and was prepared to discuss, but he wouldn't listen to me at all. Immediately DXed as contact dermatitis and said steriods would cure it, which of course isn't working at all. I did get him to do a biopsy (that hurts!) but results won't be back for another week. I will NOT see him again. I found another dermatologist that may be less arrogant, but probably won't see her for a at least another week or two.

      One question though. I notice that it is not as bad in the morning and gets worse as the day goes on. Do others experience this as well?

      hello,agree totally with u,when in bed,early morning everything is fine but once active the monster returns especially whilst sitting, im using E 45 dermatology cream throughout the day.gives some relief but the war goes on.

      #44; Tue, 18 Dec 2007 10:22:00 GMT
    • Score: Me 1, dermatologist 0!

      As I mentioned before I visited my dermatologist about 8 days ago. I had prepared a couple page summary of current research and observations noting that steriods seem to make it worse, etc., and that this was a case of red scrotum syndrome, and my research led me to believe that this was an infection, probably staph. It took him all of 10 seconds to: 1) complete dismiss this as nonsense, 2) diagnosis it definitively as contact dermatitis, 3) refuse to look at my research or even listen to me, and 4) put me on strong steriod cream indicating that it would clear up within a week or so. I did get him to agree to a biopsy just to appease me.

      Well, this morning I got a call from the nurse at the dermatologists office and lo and behold, it is a staph infection! And, of course, steriods make infections worse. I am now on a two week course of an antibiotic ointment (Mupirocin, 2%).

      I am not positive that this specific treatment will work, but it almost doesn't matter. Now that there is a definitive diagnosis, it should be possible to treat it. It may need oral antibiotics. I will keep you posted as to how well this works.

      I don't know that everyone here has exactly the same thing, but you should go to your dermatologist and insist on getting a biopsy. If s/he won't do it, find one that will. You can cite this case as an example if it helps.

      If you do get a biopsy, please post the result so we can get an idea of this is what is going on in general. It will probably take about a week or so to get the result. If others get the same biopsy results, please post any information about specific treatments so we can compare notes.

      Aside from being furious at my dermatologist (who would of course never considering apologizing to me), I am now feeling optomistic that this can be treated!

      #45; Tue, 18 Dec 2007 10:23:00 GMT
    • hows the mupirocin ointment going so far,any use?can you buy it over the counter at the pharmacy?please let me know asap
      #46; Tue, 18 Dec 2007 10:24:00 GMT
    • You can't get this over the counter. A tube costs about $50 but insurance should cover it normally.

      I think it is helping but slowly. Because of the week plus spent making things worse with the steroids, I have a ways to go. At this point the itching is totally gone and I am not having any discomfort during the day. At night things are still red and a bit raw, but not as bad as before. I had actually developed boils on my inner thighs after a week of treatment caused by the constant rubbing off of the steroids to that area. That was pretty bad but I am using the antibiotic cream on that area and it is working very quickly there.

      It takes longer for an antibiotic to work than a steroid but I have only been on for about 5 days so still early. From the reading I have done, this is a very appropriate treatment for staph skin infections, but sometimes it takes oral antibiotics if the topical doesn't work.

      I would still urge you try to get a biopsy so the dermatologist will not have any reason to doubt that a staph infection is the cause.

      #47; Tue, 18 Dec 2007 10:25:00 GMT
    • cheers thanks for your help will let ya know how it goes
      #48; Tue, 18 Dec 2007 10:26:00 GMT
    • Got back from the Genital Dermatologist today and they had the biopsy results, it showed eczema, which I had really bad as a kid. But my rectum itches too and she looked at that and thought maybe psoriasis. She was glad she did the biopsy becuase she thinks it might not be the red scrotal syndrome. Hope this helps

      2 questions for you.

      does your scrotum smell?

      how do you treat eczma on your scrotum?

      thanx

      #49; Tue, 18 Dec 2007 10:27:00 GMT
    • I've been saying this is a staph infection since a couple months after I first got it (I've had it for a year and a half now). The fact that it follows the boundary of hair follicles is a dead give away. I ran into the same problem as you with arrogant dermatoligists not listening to me and telling me there is no way it is an infection.

      The problem with these type of infections is that they tend to be resistant to many types of antibiotic treatment and are very difficult to get rid of. It doesn't help that most doctors seem to be clueless about the whole thing and offer little help.

      I have continued using the Gold Bond powder with excellent symptomatic relief. It might be that the body will eventually clear this type of infection on it's own as new skin cells continually push upwards. The mupirocin is definitely worth a shot though...let us know if it works for you. Of course, what works for one of these infections will not necessarily work for others...

      #50; Tue, 18 Dec 2007 10:28:00 GMT
    • My scrotum has had an itchy , unsightly rash for a couple of months now. It is uncomfortable and looks pretty bad. It has affected my sex life as I just haven't felt very sexy since I've contracted it.

      My GP thought it was an allergy to my laundry detergent and suggested I double rinse my laundry, but I just knew that was a crock.

      Then I found a prominent website with the right information. I feel a little weird giving this info away because he charges for it. However, if anyone is justified in doing so, it is probably me me. Here's the thing :

      I have used these ingredients on my penis already, albeit for another problem, and it worked great for that. This was a persistent urethra inflammation. It was a very effective treatment, but it never occurred to me to try it topically, even though I also use one of the ingredients every night for gum health! DOH! (by the way, you use hot water, not baby oil for the medium in which to treat urethritis.)

      OK, so this dude is charging $29 for this cure. He claims it costs that much to get the ad way up in the ****** search engine, and just maybe that's true, although personally, I believe he is turning a small profit from dispensing this info. Nonetheless, we are talking about a folk remedy here, a combination of which California herbalist James Green turned me on to in his wonderful Male Herbal, a great natural men's health book which I highly recommend. Do I object to making this a $29 secret? Yes I do, very strongly.-this info should be common knowledge.

      I look at it this way: if a brother is suffering (and this condition can really get to you, not just physically ,but psychologically as well,) and I can help him with a remedy that is made up of readily available essential oils, I'm going to shout it to the friggin' rooftops! I would not think to make money off of this. No Way...

      To back up a bit, I believe in these essential oils. I have used them for a number of conditions and believe me, these things kill pathogens, plain and simple. One caveat: this remedy will only work if your condition is due to a pathogen and not, like my GP believes, if it was caused by allergies such as laundry detergent. (what a bunch of BS!)

      Most cases of red ball syndrome are due to some sort of infection. If it is a yeast infection, it will not respond to anti fungal medications. Likewise it will not respond to cortisone creams either. In some cases, these treatments can exacerbate the condition. In my case I believe it iI have a yeast infection such as candida. I was thinking of bringing up the problem with my dermatologist who I am scheduled to see for a yearly checkup next week, and to ask for a biopsy to check out whether it is staph or a yeast infection. But now I don't have to. Using the following folk remedy, I am experiencing marked improvement in just one day! And believe me, I had it bad. I believe I will be completely free of this annoying condition in a few more days.

      Here's the remedy.

      1 drop of tea tree oil

      1 drop of lavender

      Add to 30 drops of mineral oil (I used good old Johnson and Johnson's for my...errr...Johnson...)

      I multiplied this mixture by 5 and added one drop of oregano oil to the mixture. I have had great luck with oregano oli with other condiitons. Please note that it is VERY strong and should be used sparingly. However it is antiseptic like nobody's business. It can be taken internally under the tongue. but again, I urge the user to be very sparing in administering this oil to such delicate tissue as found on the scrotum. A word to the wise: A little goes a long way!

      Put the above oil on your ball bag and if it is an infection, it will go away in a few days. Forget your doctor. Nothing they do will work unless they figure out what is actually going on. Even still, this treatment is relatively mild and has no side effects, as opposed to prescription drugs.

      Please pass this information on to any brothers who might be suffering from this unsighly and unpleasant problem.

      #51; Tue, 18 Dec 2007 10:29:00 GMT
    • One more thing. Appy this mixture twice a day. You can do it more times,

      but it's pretty effective so don't push it.

      #52; Tue, 18 Dec 2007 10:30:00 GMT
    • thanks bridude2001

      hello mate,hope your right about this remedy but most creams,powders provide some sort of relief for a short period.let me know how it goes anyway.does your penis and scrotum shrivel,wrinkle,tighten at all?

      #53; Tue, 18 Dec 2007 10:31:00 GMT
    • Also, for urethritis, take a few drops of Tea tree oil, add the same proportion of lavender with 1/2 the amount of bergamot oil. Add to a DPC (designated penis cup-you probably won't want to drink from it anymore)

      filled with the hottest water your johnson can stand. Soak for 10 minutes or so. Do this as much as needed until condition goes away. It usually works in a few days.

      #54; Tue, 18 Dec 2007 10:32:00 GMT
    • hello mate,hope your right about this remedy but most creams,powders provide some sort of relief for a short period.let me know how it goes anyway.does your penis and scrotum shrivel,wrinkle,tighten at all?

      No shriveling or tightening. Since I was on the cortisone, I have noticed a loosening if anything. Hopefully that will normalize in time now that I'm off that stuff. Don't think its a good idea putting that stuff so close to the little guys...

      I hear you about the other stuff providing short term relief. But this is different. If you haven't tried them, these essential oils are something else man. They are powerful antimicrobials that really kill all kinds of bugs. So if the cream your doctor prescribed isn't designed to kill a yeast infection and that's what you have, it'll be useless. That's why the cortisone or most anti fungals are useless. What if its bacterial? These essential oils work really well as antibiotics. And they aren't so choosy about what they can kill. I'm telling you-they are not so specialized.

      I'm not saying this is the answer for everybody. I doubt this will help if it's eczema or some other skin condition. But it seems to be working in my case. Granted, I'm only on day two and have a ways to go, but I am hopeful.I already see and feel a difference. No more itching and no 'creeping' feeling My suggestion is, try it. The oils are relatively cheap and you won't need to use much. You'll know whether they are working or not within a few days.

      If its a persistent condition but it looks like you've got it on the run, you can stay on it longer. You can also up the concentration, that is ,if you can stand the burn. It doesn't bother me, because I know I am killing critters. I would suggest taking a drop or two of the oregano oil under your tongue each day you are on this regime, just to kill any bugs that might be contributing to the condition internally. I have successfully dealt with respiratory infections this way.

      Well, if you decide to try it good luck and be patient. Natural cures can sometimes take longer than the pharmaceuticals, but if they are a good match for the condition you're treating, they will get you where you want to go fast enough. I believe in these oils. They have worked for me in the past.

      peace,

      Brian

      #55; Tue, 18 Dec 2007 10:33:00 GMT
    • thanks for your info gonna give it go,do ya know if this condition be spread via sex?are u advising me to try the bergamot oil,
      #56; Tue, 18 Dec 2007 10:34:00 GMT
    • Thanks for the advice Brian. I think I have seen the same website as you whilst trying to solve my problem, and although I am desperate, I wasn't sure if it was a scam or not so didn't take up the offer. I think it is immoral for guys to make cash from people's misery.

      I have had this problem since June 2005. My scrotum itches, nips, tingles, crawls. Sometimes it comes on suddenly as if I am being bitten or nipped, but there is no evidence of crabs and I had no sexual contact for a long period before it started. I went to my doctor and she just prescribed Canesten cream, which is used in the treatment of thrush. I was pretty sure it wasn't thrush or fungal and only used the cream a few times before giving up having convinced myself that she wasn't really getting to the root of the problem.

      For a while I thought it was trapped nerve or something similar and scoured the net for clues and have come up with all sorts of things from pudendal neuralgia to prostatis. I now think it may be something like a yeast infection or Candida.

      After the first few months, I developed redness on my thighs and raised visible lines matching the perimieter of where my scrotum contacted my thigh - it looked like ringworm, but I think it came from me sweating down there more due to me constantly moving position and clenching my balls and thighs due to the constant nipping and itching. This (thigh redness) eventually cleared on its own but the nipping and itching remained. I haven't really had what I could describe as burning as such.

      The itch / nip lasted 6 months, driving me to distraction, then seemed to clear, but came back after about 4 pain free months. My scrotum is more dark brown than red, though it does get red with me scratching and I have even been so desperate, that I have even asked friends what colour their sacks are as I am not sure mine is normal. It is dark / brownish right up to where it joins my thigh / pelvis then the skin is normal coloured. Not having examned my scrotum before, I can't remember if it has always been this colour.

      I have decided to use the Canesten cream again as originally prescribed by my doc, again and will use up the tube till its finished. If, as I strongly suspect it doesn't work, I will try your herbal remedy. Am also contemplating going on a 3 month anti Candida diet / regime to see if that helps

      Thanks again for sharing

      #57; Tue, 18 Dec 2007 10:35:00 GMT
    • You don't need the bergamot at all in this formula. I always thought it was unecessary in the penis soak. I do think the addition of a tiny amount of oregano oil could help but please, just one drop to 150 drops of mineral oil! And don't be afraid to support your healing by taking a drop or two of the oregano oil under the tongue.

      Good luck to all of us!

      Brian

      PS: Its looking better every day. I think in my case it might take a bit longer than the three days. I'm going to use it until it's completely gone.

      #58; Tue, 18 Dec 2007 10:37:00 GMT
    • I do think that this could be a Candida yeast infection, although I would not rule out a staph infection in my case. The good news is, I have seen results before from these essential oils. IF you still have the problem after you finish your latest treatment, give this a go. Just don't overdo it, that is, don't make it too strong and don't treat more than two or three times a day. You can actually burn the skin with too strong a concentration. No reason to hit it too hard. Just be consistent. Wash thoroughly with mild soap. Dry thoroughly and apply too all areas that seem affected. Treat until you're completely clear. Depending on how severe and how long you have had it, it might take days or even a week or more.

      I have lost a lot of faith in my GP over the past few years. He wanted me to get on Lipitor when my cholesterol wasn't that high. I was able to knock it down naturally, much to his surprise. He was completely off about another condition I am dealing with, and now this. I am beginning to think more and more about self care, getting educated and finding effective ways to deal with health problems.

      A doctor friend of mine said western medicine is good for three things, diagnosing serious internal problems, surgery when necessary and antibiotics when called for. I agree with him. Everything else is a crap shoot.

      #59; Tue, 18 Dec 2007 10:38:00 GMT
    • As far as being spread by sex-from what I have read, its possible. There isn't a lot of information on this. Anybody else want to weigh in on this?
      #60; Tue, 18 Dec 2007 10:38:00 GMT
    • I just want to say that after only three days, my scrotum is almost back to normal. No more itching, creepy crawly sensations etc. And it seems to look a healthy light pink color, which I vaguely remember as normal. Because of the severity of the condition prior to treatment, I have decided to continue to treat for a couple more days at least.

      I am convinced this simple formula is indeed the solution for many of us with this annoying and embarassing condition.

      My girlfriend thinks I broke some sort of ethics agreement by disclosing this information here because I initially paid for it, but I say, folk remedies are for folks! I did not sign anything which forbids me from sharing this information. If it is effective, let's get that information out there to our brothers. This is the cool thing about the internet. We can share information. Making money is all well and good but first and foremost, let's form community and help each other. [deleted]

      I am sure there are many people who, like the poster who responded to my post, feel that these must be bogus claims, that these people are selling snake oil or something and therefore did not want to spend the money on BS. This one is most assuredly not.

      I am happy to have spent my $29 because it just increased my confidence in simple quality home remedies. I feel honored to be able to pass this information on to those who are suffering from this funky malady. To try to profit from a folk remedy to me is itself a breach of ethics.

      Please pass this information on to anyone who can use it.Believe me, it really works.

      Brian

      #61; Tue, 18 Dec 2007 10:39:00 GMT
    • I just want to say that after only three days, my scrotum is almost back to normal. No more itching, creepy crawly sensations etc. And it seems to look a healthy light pink color, which I vaguely remember as normal. Because of the severity of the condition prior to treatment, I have decided to continue to treat for a couple more days at least.

      I am convinced this simple formula is indeed the solution for many of us with this annoying and embarassing condition.

      My girlfriend thinks I broke some sort of ethics agreement by disclosing this information here because I initially paid for it, but I say, folk remedies are for folks! I did not sign anything which forbids me from sharing this information. If it is effective, let's get that information out there to our brothers. This is the cool thing about the internet. We can share information. Making money is all well and good but first and foremost, let's form community and help each other. [deleted]

      I am sure there are many people who, like the poster who responded to my post, feel that these must be bogus claims, that these people are selling snake oil or something and therefore did not want to spend the money on BS. This one is most assuredly not.

      I am happy to have spent my $29 because it just increased my confidence in simple quality home remedies. I feel honored to be able to pass this information on to those who are suffering from this funky malady. To try to profit from a folk remedy to me is itself a breach of ethics.

      Please pass this information on to anyone who can use it.Believe me, it really works.

      Brianagree with brian totally used the remedy two days in a row now, only use twice a day with the correct mix,i find using e 45 dermatological cream in between should help,BRIAN i feel has given light and hope to over come this embarrassing situation using the above remedy :angel: and i urge everyone to gve it a shot,will keep in touch with yall,cheers b

      #62; Tue, 18 Dec 2007 10:41:00 GMT
    • what is oregano oil and where do ya get it?
      #63; Tue, 18 Dec 2007 10:42:00 GMT
    • Henrik, how is the herbal cure going? Not sure where you get oregano oil I am afraid. Can only suggest obvious sources like the usual herbal remedy shops or maybe if there are any Chinese medicine shops where you are, they have a range of natural stuff.

      I am on Canesten cream for at least another week and will then try the herbal cure if it hasn't cleared up. I will post back on any progress. Have been trying to find photos on the web of normal scrotums to compare with mine.

      Hope your condition is still improving

      #64; Tue, 18 Dec 2007 10:43:00 GMT
    • Henrik, how is the herbal cure going? Not sure where you get oregano oil I am afraid. Can only suggest obvious sources like the usual herbal remedy shops or maybe if there are any Chinese medicine shops where you are, they have a range of natural stuff.

      I am on Canesten cream for at least another week and will then try the herbal cure if it hasn't cleared up. I will post back on any progress. Have been trying to find photos on the web of normal scrotums to compare with mine.

      Hope your condition is still improving

      i would give up on the canesten right away,steroid creams help initially but dont rid the condition,have been there no results,have been using the lavender,tee tree,baby oil,finding it has helped, just need to get the oregano,going to my doc 2morrow see if he can help me find it and give advice,does your symptoms clear whilst in bed then return in the morn?mine do,agree that my bag tightens and goes a brown colour,

      #65; Tue, 18 Dec 2007 10:44:00 GMT
    • [QUOTE=sq10680;2879036]I've been saying this is a staph infection since a couple months after I first got it (I've had it for a year and a half now). The fact that it follows the boundary of hair follicles is a dead give away. I ran into the same problem as you with arrogant dermatoligists not listening to me and telling me there is no way it is an infection.

      QUOTE]

      I had an interesting weekend and past couple of days. I had been on the mupirocin for a little more than a week without much change. Over the weekend the redness spread a little more on the shaft of the penis. As before this started with intense itching. On Monday morning I called to indicate that this didn't seem to be very effective and asked to be switched to oral antibiotics, which is what I was wanting in the first place once I was told I was dealing with a staph infection. At the end of the day Monday I got a call from the dermatologist. He actually indicated that it looks like we need a second opinion, although he is still invested in his theory that this is really just a contact dermatitis in spite of the biopsy results and now contents that the reason the steriods didn't work is that I am actually allergic to the steriod ointment (which only 2% of the population is...)!

      He asked me if I would be willing to participate in grand rounds at the dermatology office this morning. This means that about every dermatologist in the clinic (about 25) would take a look at the condition then they would all meet to discuss and examine the pathology results. That was an interesting experience to say the least. However, it did give me an opportunity to argue my theory that this was a staph infection (as the biopsy results indicated) and that it seemed to me that trying oral antibiotics would be the logical next step.

      I got a call a couple of hours later from the dermatologist indicating that while he still felt this was contact dermatitis, the consensus opinion was that I should try oral antibiotics next. So as of noon today I am taking cephalexin - the generic form of Keflex, which is a pretty strong antibiotic. I will let you know how it goes over the next week or so.

      #66; Tue, 18 Dec 2007 10:45:00 GMT
    • i would give up on the canesten right away,steroid creams help initially but dont rid the condition,have been there no results,have been using the lavender,tee tree,baby oil,finding it has helped, just need to get the oregano,going to my doc 2morrow see if he can help me find it and give advice,does your symptoms clear whilst in bed then return in the morn?mine do,agree that my bag tightens and goes a brown colour,

      Henrik, I didn't think Canesten cream contained steroids?, but I admit don't recognise all the ingredients on the tube. My symptoms are at their worst when I am sitting, though I have had the itch, sudden sharp sting sensation standing and lying in bed but nowhere near the same severity as in the sitting position. My doc put this change in severity when sitting down, to contact of my scrotum with my underwear, which I didn't buy as I had been getting pins and needles and other strange sensations in my limbs before all this started, and had bought in to nerve damage as the root of the problem. These other "nerve" symptoms have been diagnised as benign. But like some of the recent posters, I have always had my suspicions that although my scrotum is dark brown, their may be some nerve damage which is affected by posture or blood flow issues equally affected by whether I am lying down or upright, as opposed to the skin contacting fabric or not.

      I had a desk job until recently where I could only get comfortable at the desk by adopting bad posture and slouching, leaving my lower back unsupported, and most of my weight probably on my cocyx (spelling??). The job was chained to the desk with not a lot of movement throughout the day. I have sometimes wondered if 4 years of this has done something to the nerves around my tail bone. Would be interesting to know if all the sufferers have jobs which involve sitting for long periods with the potential for bad posture and trapping of nerves / disturbed blood flow that may bring.

      It's hard to tell if my scrotum skin is dark coloured due to a skin condition or due to excess blood. The hair follicles are raised and there are lots of bright red thread veins, but before things got bad I never paid attention much to this area nor the colour of my scrotum.

      I am gonna start on the herbal treatment, as I am going on holiday and am hoping it will ease my pain some and let me enjoy it better.

      Good luck and stay in touch with your progress.

      #67; Tue, 18 Dec 2007 10:46:00 GMT
    • I've been going to a new dermatologist. He prescribed a cream called Vytone after my 1st visit. Has it worked? I don't think so. The burning feeling has subsided some, but the wetness and the redness still comes and goes. He tested for fungus: no fungal infection present. He recommended Cetaphil soap on my follow up visit. I also got a prescription for a topical antibiotic for acne (which i'm surreptitiously testing on my groin).

      Also: I've been doing a lot of cardio at the gym lately and stretching my back out throughout the day. I think both of those things have an impact.

      Whoever mentioned blood vessels, yes, they are involved somehow. I can see thin red ones on my scrotum sometimes.

      Anyways, this condition is so frustrating because yesterday it looked like it was about to go away--like everything was starting to come together, my balls looked pasty and white! lol. And then today, it came roaring back. It's so day to day.

      The other problem is that I no matter what I tell doctors, they just don't get it. If they were in my shoes for just 1 hour, they'd be working to nail down a cause and cure.

      #68; Tue, 18 Dec 2007 10:47:00 GMT
    • Heres more "food for thought"

      Red burning itching skin is usually a yeast infection. You can have a yeast infection anywhere on the body that gets hot. Oral, vaginal or in creases or folds of skin. On crotches. Untreated, it can be very uncomfortable. I get it from my COPD inhalers. My wife got it all the time in folds of skin. Yeast infections are not just a female thing. Anybody can get them. Maybe even you. The medicine for this is real simple and cheap. I buy it at the 99 cent store for 99 cents. Its called CLOTRIMAZOLE. It can also be found in the drug store in the female section for $10. Doctors don't give you anything this cheap. Give it a try and see what you think. It might work for you.

      #69; Tue, 18 Dec 2007 10:48:00 GMT
    • hi all,

      after suffering from this condition for over a year now and seeing a number of dermatologists (one of whom is meant to be a specialist in this area) to little avail, it gives me at least some to hope to discover that i am not alone and that some of you seem to be having some progress with treatments (fingers crossed...)

      i am unsure how how this first started for me. i experience many of the same symptoms referred to above - redness, burning, sweaty/clammy skin, prickly sensations, wrinkling/shrinkage, unpleasant smell on occasion, darkening of the skin sometimes, itching - all of which is concentrated on the scrotum alone.

      for me it is most comfortable in the morning after a shower, and worst at the end of the day. i too am sitting for most of my day, which gets very uncomfortable very quickly.

      my doctors have assured me that it is not contracted sexually. however, given that they do not seem to know how to treat this, i cannot be sure of that.

      i have been treating this with elidel cream, applied once daily, for the past 8 months. while this does have a soothing effect, at most it seems as if all we are doing is attempting to manage a problem, not cure it. this pisses me off immensely...!!! why aren't doctors/the medical profession trying to cure this?

      Hiroprotaganist - your herbal treatment seems to have offered the most positive results of anyone who has contributed to the above dialogue. PLEASE PLEASE PLEASE continue to give us updates, at least for a few weeks, so that we know whether the treatment has actually worked or not.

      my doctor (who i saw today) said that one of the difficulties with this is that the successful cases (ie. those for whom the symptoms disappear) are rarely reported as when people stop having the problem they stop going to the doctor. so, if people are having success with some treatments, please take the time to help out your brothers in need.../!

      also, i've been using cetaphil soap (all over) which is much better than normal soap which is too harsh on the skin.

      apologies for the long posting... good luck to everyone out there suffering from this.

      best regards

      jim

      #70; Tue, 18 Dec 2007 10:49:00 GMT
    • bridude/brian - my apologies, i believe you are the one to be credited with introducing the herbal treatment... i think i will give it a try.

      if you are still around, please let us know whether you're completely cleared?

      many thanks :)

      #71; Tue, 18 Dec 2007 10:50:00 GMT
    • thank you brian, i greatly appreciate it.

      i have today started on the herbal gear, and am hoping (well, praying...!) for a similar result. i will let the forum know how it goes.

      many thanks again.

      jim

      #72; Tue, 18 Dec 2007 10:51:00 GMT
    • This is my first time here and I have read all the replies and questions about this topic.

      I have been suffering with these symptoms for approx 8 years have been using numerous creams to no avail.

      The redness and severe itch never goes away and on some occasions The backs of my legs,arms,and chest break out in a pimple type rash but disappears after about 3 weeks but never leaves the scrotum.

      I have been to 4 skin specialists and received 4 different answers.I attended a skin specialist today who I have been waiting to see for 2 years now as it takes that length of time to see him.

      He said I have scrotum and penile syndrome and it is not sexually transmitted and cannot be passed on to others. He said I should never use any creams on it as these only make it worse. I have the same partner for 35 years and she has no complaints. (Than God) He has prescribed for me Seroxat for me to take over the next 3 months. However when I got the prescription filled and read the documentation about this tablet I was shocked to find out they are especially for people with chronic depression,people who are afraid to go out,phobias etc etc. The side effects are numerous: E.G. vomiting,rash,sweating fevers,restless,suicidal,liver problems,feeling dizzy,blurred vision,weight gain,feeling confused etc etc and the list of effects when you stop the medication is as bad.

      I have researched this drug on the internet and discovered several letters from people who were on them and sever cases of people killing while on them,committing suicide.One woman wrote that her husband was put on them and then tried to kill her.

      My question to you all is.: knowing all this should I do what the specialist said. and take all these risks or just put up with what I have got.

      P. S I have had cancer removed from my penis 2 months ago, a tumor on my nose, 2 saliva glands removed last year,three quarters of my stomach removed in 1980 ,etc etc

      #73; Tue, 18 Dec 2007 10:52:00 GMT
    • I may be able to add something here. I had this (burning red uncomfortable scrotum)about 11 years ago and went through everything all of you did. A couple of derms and lots of cream. Nothing worked and actually made it worse. The only thing that provided some comfort was plain cornstarch powder. After two years, it slowly went away and was completely gone after 3 or 4 years. Great Huh??

      Only problem is that it came back two years ago after about 5 years of comfort. Although I knew this was NOT a skin problem I went to another derm. He said this was not a skin problem but a nerve problem. I went to a neurologist who did some MRI's. He did not find anything major, but said it probably was a nerve issue, but would be hard to find anything witout major testing. He perscribed me Neurontin, which seemed to help. It is slowly fading away again, but I expect another couple of years before it is completely gone again.

      I am troubled by the fact that it came back which makes me think that this will come and go my whole life. Good news is that it went away once and will probably go away again.

      Keep us posted if anyone finds anything that helps.

      #74; Tue, 18 Dec 2007 10:53:00 GMT
    • ohiguy, I think that there may be various causes of the red / itchy scrotum. I think for some people on here, it is a skin / dermatological problem. For others it may be related to nerve damage / compression in this area. Others have also suggested, some kind of vascular or blood flow issue which is also plausible. We are all experts on our own symptoms, as we are the ones who are suffering. The difficulty is getting it across to doctors who have their own preconceived ideas, and aren't good at listening to often intelligent patients, trying to assist them.

      I like you have had some nervous system issues for 6 years which result in a variety of symptoms. My doctor said I have "neuropathy" which is a bit of a waste basket you are put in when they cannot diagnose a specific cause. I used to get itchy forearms and sometimes sudden sharp pains in my fingers and toes. When the itchy scrotum started 2 years ago, the doctor prescribed me cream but my suspicion was that it was an extension of the neuroloigical symptoms I had experienced previously, as I would often get sudden sharp pain on my scrotum. But unlike the itchy forearms, the itchy scrotum seems more persistent

      16 months ago, I had an MRI scan on my brain and nerve conduction studies carried out as I was worried I had MS. All tests came back normal which was a relief, but the itchy scrotum still persists. If only I could have the itchy forearms back - they were more tolerable

      I am now considering an MRI of my neck and spine to see if there is any nerve damage in my tail bone area which could be causing the discomfort in my scrotum.

      I am not ruling out some rare skin condition which is unresponsive to most treatments. That is why it would be good to get feedback from posters, on the success or otherwise of the herbal treatment proposed a few weeks ago.

      I wonder if the fact that, for many people, the condition has not responded to many of the dermatological treatments available, suggests that some people are suffering from nerve problems in this sensitive area. Or that it genuinely is a rare condition which is resistant to the usual creams. I am going to try the natural remedy as there is nothing to lose.

      p.s. sorry for the long post

      #75; Tue, 18 Dec 2007 10:54:00 GMT
    • Good observations. I had the brain and entire spine MRI'd. Neurogolist wanted to check for MS, which was ruled out. Also thought compression of the nerve, which it was not. I think this issue is more widespread than we think, but since it is not wide enough to make reseachers or drug companies any money, I don't think any doctors or reseachers will take an interest in it.

      Let us know if the herbal remedy works.

      Like I said, this went away for several years once, I think it will do it again, but it is a slow burnout and very frustrating.

      #76; Tue, 18 Dec 2007 10:55:00 GMT
    • back again, went to the doc for the 8th time explained my symptoms he told me that there was nothing to worry about because i told him whilst in bed/morn my symptoms seemed fine,told him i know my body n something isnt right. I have been under alot of stress for the last year and he said that was probably the reason,asked him to do some tests so he took a penile and scrotum swab, i was then told i had an infection and was given flucloxiciilin tabs 4 a day for a week they did stop the itch and cleared it up a bit but still suffering the red bag, now back on the herbal remedy using (dpc) method bridude told us about seems to help but has not totally cleared totally.will keep in touch:confused:
      #77; Tue, 18 Dec 2007 10:56:00 GMT
    • Has any of our doctors ever put forth a theory as to why the symptoms seem to lessen while in bed or in the morning?
      #78; Tue, 18 Dec 2007 10:57:00 GMT
    • JJ:

      I had this 11 years ago for about 3 to 4 years. No link to anything directly. It started to fade away after 1 or 2 years. Nothinig really worked for me. Only when I did not dwell and obsess on it did it start to fade away. Stayed gone for 5 years, then all of a sudden it came back. I have had it for 2 years now and it is fading away again, but slowly. I too believe it is some sort of nerve or compression issue that I will probably have to deal with it coming and going my entire life. Do not know what triggers it, but I was under a lot of stress during both the periods of initial onset. I do not know what sustains it though...

      I think unfortunately, the best thing to do is to do nothing and try to ignore it. The comfort I can give you is that for me it went away once and I have to believe it will go away again. I believe that is why you see people dropping off the boards after a couple of years, because as the symptoms fade, they just stop thinking about it.

      I will try the tight underwear. I have been wearing lose boxers, but you may be right that tighter may be better so that you don't notice every movement.

      Please keep the thoughts coming.

      #79; Tue, 18 Dec 2007 10:58:00 GMT
    • Has anyone tried any alternative treatments, such as accupuncture?
      #80; Tue, 18 Dec 2007 10:59:00 GMT
    • Hi

      Try using Natural Yogurt. Try it and see, it worked for me in a big way. Check out Natural Yogurt on the net. It has an Active bacteria that help kill off this infection. it took away all the irratation and made me feel normal again. I dont say it's a complete cure, but god it helps, hope it works for you as it did for me. I use E45 Cream during the day but still apply the Yogurt when required.

      Good luck

      #81; Tue, 18 Dec 2007 11:00:00 GMT
    • Whoever suggested the baby oil, tea trea, lavender, oregano blend--wow! I ignored the comment at first thinking it was a bunch of baloney. However, out of desperation, I bought the ingredients 2 days ago and whipped up a batch. It's definitely doing something--the skin looks so much better already, dare I say almost normal. Dunno how long it will last though...

      Has anyone else seen positive results from it?

      #82; Tue, 18 Dec 2007 11:01:00 GMT
    • Can you tell me the how you mixed the ingredients and how you applied it? I picked up the tea tree oil and oregano but cannot find lavender. Any ideas where I can get it? Did you mix it with water or mineral oil? I'm very hesitant. I've had my problem for a year. My newest doc's got me using ProTopic for two months. He says the steroids I've taken have made things worse (three different ones for two weeks each over a 7 month period). I'm only on week two of this new med so I'm not sure if I should attempt the home remedy yet but I'd really like to. I'd like to see some more responses from others who've tried it. So please keep posting. The original person who posted the concoction hasn't reposted in a while after he said it was getting better. I wonder if it completely healed his situation.

      Thanks.

      #83; Tue, 18 Dec 2007 11:02:00 GMT
    • Like Mark, I would also like to know what the correct mixture is for the herbal treatment and whether or not it is helping the condition. I would like to think it is working and most guys are getting the chance to get on with their lives instead of spending time on the internet looking for a cure. Any feedback appreciated.
      #84; Tue, 18 Dec 2007 11:03:00 GMT
    • i have used the herbal mixture with pretty good results - has not completely gone away but definitely seems to have some affect. it was detailed to me and i have used it as follows:

      - 30 drops mineral oil (effectively baby oil, j&j is fine);

      - 1 drop lavender oil;

      - 1 drop tea trea oil;

      multiply this whole mixture by 5, and apply. the oregano oil is optional so i was told (i haven't used it, but may yet add it in), and should be used very carefully as is extremely harsh on the skin - only 1 drop was advised to go into the above (ie. 150 drops / 5 drops / 5 drops / 1 drop).

      read back through the discussion to get more tips. this has not 'cured' me, but does seem to have helped.

      the other thing that has made quite a difference is wearing tighter, more supportive underwear, which leads me to believe there may be some credit to the theory this is at least partly vascular. i am seeing a second specialist in a few weeks so will report if anything new is offered.

      good luck all

      #85; Tue, 18 Dec 2007 11:04:00 GMT
    • Jim, thanks for the feedback and progress report. Good to see the mix broken down like that. I haven't tried the herbal remedy but plan to start soon.

      Other people have reported some relief with wearing tighter underwear. I also believe that the severity of the condition can be affected by bloodflow, possibly making the area more sensitive. I am unsure if the relief provided by tighter underwear is due to better general support or is related to something always being in contact with the scrotum. My thinking is, when I get itchy and irritated down there due to this condition, just cupping my hand and contacting it with my scrotum, not scratching as such, seems to help. Obviously this is something you can't do in the office, so new pants may be a help.

      Thanks again for the feedback.

      #86; Tue, 18 Dec 2007 11:05:00 GMT
    • I posted a couple months ago, but have been following regularly...2 1/2 years for me with a red itchy, tingly scrotum contracted after oral sex. Don't know how that works but what ever. Heading to John's Hopkins Dermatology Center on May 16th to see leading infectious diseases/Dermo specialist. Will let you know what the crem de la crem has to say about this.
      #87; Tue, 18 Dec 2007 11:06:00 GMT
    • HI ..

      I been reading all these post.. for the last year I been having this burning itching feeling on the buttom of my scrotum.. like alot of the post it happen worse before bed..and the minute I touch it to scratch it I cant stop scratching.. to the point where I cut myself..the burning is the worse..I also have some very little bumps like tinny pimple that as nothing in it..

      getting ready to see a dermatologist..but after reading some of these post it look like it wont take me anywhere..

      any of you that have the burning have the same little bumps ??

      ( sorry about the misspel..english is not my first language)

      #88; Tue, 18 Dec 2007 11:07:00 GMT
    • Just a word of caution if using Oregano oil. The stuff is like sulfuric acid. Do not apply the concentrated oil directly to the skin, not even one drop. I found out the hard way and now Neosporin is my salve of choice on the area. :dizzy:
      #89; Tue, 18 Dec 2007 11:08:00 GMT
    • The results couldnt be worse... Dr. Ciro Martins of the John's Hopkins Dermatological Center breezed through my case report, gave me a look and said tough luck kid. He had no idea. Recommended Zyrtec, and Atarax. Two anti histamines I have been on for 2 years already. Sad to say I've exhausted 3 dermos, 2 infectious diseases, 2 general practioners, and 1 urologist, and none has any clue. None, zilch, zippo, nada.
      #90; Tue, 18 Dec 2007 11:09:00 GMT
    • I was also thinking if we want to find out if this could be sexually transmitted, the simple solution would be to find out if another guy has been with the same person you think you got this from and also has the condition. I would have to believe that there would be pockets of this disorder if it was trully sexually transmitted.
      #91; Tue, 18 Dec 2007 11:10:00 GMT
    • i went 2 my doc a 2 months ago,he took penile and scrotum swabs, was told i had an infection by post picked up prescription (flucloxacillin 500mg) 7 day course worked better than anything else but didnt clear fully going back on te 4th june 2 ask 4 a 2 week course of anti biotics.fingers crossed this might clear my symptoms,has anyone else tried these?,will get back with my results asap. nothing else has worked as well as these tabs.
      #92; Tue, 18 Dec 2007 11:11:00 GMT
    • Hey Henrik, hows it going? Have you given up on the herbal treatment? Good to see this thread still active. I have been away travelling for 2 periods recently, 4 weeks apart. This has involved relaxing and drinking, sometimes too much, for 10 -14 days. During these trips, the itching has all but disappeared. This may be due to either the drink having a therapeutic effect or maybe my mind not being on the symptons so much. Also during these trips, I have been on my feet most days, doing a lot of walking.

      Now that I am home, the itching is starting up again. So I am not sure what it is that helps

      a) drinking lots of beer at night

      b) being on holiday

      c) standing up most of the day / walking

      I haven't had the chance to get the ingredients for the herbal solution but would like to try it. Would be good to know whether or not you have given up on it and are now following a prescribed medication route.

      #93; Tue, 18 Dec 2007 11:12:00 GMT
    • A final note, just curios as to the sexual contact everyone experienced. Mine was receptive oral sex. No vaginal

      Take my word for it...it is orally transmitted. I recieved oral sex from a girl just like you. Red burning scrotum for almost 3 years now. Unfortunately for me, it has caused chronic dermatographism throughout the entire surface of my skin. Think red burning skin on your chest, stomach, legs, back...you name it. All started with the scrotum though. During the time I thought it was herpes, I placed my mouth on my wifes breast during a small make out session. A week or so later, she had a swollen red breast. After, it radiated and now she also has red itchy skin pretty much over the entire surface area. Having been through this, I can say that I have recovered perhaps to 60% of normal the scrotum burns less and tingles less frequently, but ever goes away.

      I've been to 3 dermos, and none of them think there is any type of infection, but the claim I have some type of "vascular Response" (direct quote) to some prior infection.

      So that doesnt do me much good.

      #94; Tue, 18 Dec 2007 11:13:00 GMT
    • TommyJones,

      Did you ever look into it possible being HSV1 genitally or maybe CMV, Epstein Barr etc.

      Having chronic vascular inflammation in the area, the body clearly has established some kind of chronic inflammatory defense mechanism in the area.

      Those are all standed viruses that the majority of the population has and can be passed through saliva. Difference is that most people would get it from kissing and get a sore throat, fever, etc.

      In this case it may react differently in the genital area and our bodies defense reaction to the virus may take time to complete itself. Kind of like a post herpetic neuralgia...

      I was hugely concerned about HSV2 (all tests were negative) but now think it could be a defense reaction to HSV1 genitally that will eventually end once the body stops defending against it...

      #95; Tue, 18 Dec 2007 11:14:00 GMT
    • Clearly there are a number of different processes at work here. But for those with burning and itching, here is what helps. When it reached the point last week when I could not sit still because of the itching and burning, I tried ice. A cold pack my wife keeps in the refrigerator. Within two minutes it was gone. And stayed gone as long as I held it there, until the ice pack warmed up (about an hour). At night, I had been using cold wet washcloths to provide temporary relief, but it was short-lived and messy. So I froze several plastic bottles of water and kept them in a cooler by the bed. Each bottle (in a thick sock) gave me about 3 hours sleep. Which was great since about 20 minutes at a stretch was all I was getting before. Be careful not to get frostbite, keep the ice wrapped in something.

      During the day, sitting at my desk, I put a fan on the floor and direct a stream of air at my groin. (I work at home, alone.) This cold air provides nearly the same effect as the ice, and seems to be therapeutic. Because

      after a week of this, along with Elidel, I am clearing up. I slept almost through the night without itching and without ice last night. I think the air is doing the job. Give it a try, it may help you, too.

      JL

      #96; Tue, 18 Dec 2007 11:15:00 GMT
    • I never thought I'd be able to write that I think it may be gone.

      I had the symptoms described here (for 3-4 years) in conjunction with a chronic itching around the anus, particularly at night.

      Having been to a few GP's and a hospital (in Australia and UK) with no relief I was fed up with the medical profession.

      About a month (maybe 5wks) ago I went to the Dr again and cpmlained that nothing had fixed it. He prescribed 2x5 day courses of Antibiotics (Augmentin from memory) and a cream called Kenacomb.

      The ointment stung a little the first time I applied (nothing worse than the itch though), particularly around the anus. However, to my relief that night I did not itch. I washed between applications with a bowl of warm water containing 3-5 drops of Tea tree oil, dried the area and reapplied the Kenacomb.

      After 5 days there was still no itch so I completed the repeat of the anitbiotic. I continued with the cream for another 2 weeks and have only had to apply it maybe once every 1-2 weeks since then, and mainly around the anus.

      If I had to give a % result, I would say that it has cleared up 98-99%. The scrotum no longer itches at night and I can sleep in any position, walk without pain and most important I no longer feel that craving to itch and the shame that follows it.

      I hope that at least one person can get a result from this, if not all of you. I suffered for ages and I know your pain. Hopefully this works for you.

      Please feel free to post back and I'll try to answer if I can.

      Good luck.

      #97; Tue, 18 Dec 2007 11:16:00 GMT
    • Seem to be cured now. Here is a summary of what transpired.

      Developed symptoms which spread quickly over entire scrotum - painful, very itchy, etc as frequently described.

      Read the posts here and decided probably a skin infection. Went to see a dermatologist. He spent a good 10 seconds looking at it and diagnosed it as contact dermatitis. He refused to listen to me or review the research that I had done suggesting that was an infection. He prescribed topical steroids but agreed to do a biopsy to appease me.

      Week later symptoms were getting worse (as I expected) when I got a call from the nurse saying "stop the steriods immediately - they found a staph infection and steriods would just make it worse" (tell me about it...).

      Prescribed topical antibiotic - used two weeks - no effect. Dermatologist gave up but offered to have me seen in next grand rounds. I asked for oral antibiotics but he refused.

      Went in and did the grand rounds and managed to convince people to try oral antibiotics. At end of two weeks, seemed a little better but no major change. The original dermatologist still felt that this was contact dermatitis but that I was one of the 2% of the population allergic to topical steroid ointments! (He wouldn't give up on his original diagnosis).

      Managed to get an appointment with an expert on obscure rashes a few weeks later. In contrast to the original dermatologist, she listened carefully to what I thought was going on, dismissed the contact dermatitis idea immediately, and took a swab to do a culture and sensitivity. That turned out to be negative but I noticed that boils I had had on my inner thighs for years had disappeared with the course of oral antibiotics.

      Went back to see her. Her guess was that this was definitely a skin infection, probably staph, and that the two week course of Keflex had in fact cured it. However, she said it could take many weeks for the skin to return to normal.

      Turned out she was correct. At this point the skin texture is completely back to normal, no itching for many weeks, and the skin is now just barely pink!

      Here is my suggestion to everyone after talking with the dermatologist one last time. She suggests that you go into your dermatologist and first have a simple swap done for a culture and sensitivity. If positive, you need to go on oral antibiotics based on the sensitivity results. However, this may turn out to be negative in some cases even with a skin infection. In this case, she suggested that you have a biopsy done. This is a bit painful, but worth it if it finally shows a treatable infection.

      I suggest printing out this message and taking it to your dermatologist. I hope this helps at least some of you.

      Ed

      #98; Tue, 18 Dec 2007 11:17:00 GMT
    • I have been suffering for the past 8 years with this Red itchy Burning and also have very itchy pimples appearing on my legs,arms,chest . Have been to 4 dermatologists with 4 completely different answers.The last one I was with I had to wait 2 years to get to see. He diagnosed red scrotum syndrome and said he would give me a tablet to cure it I was delighted at this as I was in agony for so long.

      He prescribed a tablet called Seroxat and when I went to have the prescription filled the lady chemist queried me as to why I was taking this tablet and when I told her it was for the rash she informed me it had very severe side effects and never heard of it to be used for skin rashes. She said she would contact the dermatologist for his comments but he was not impressed and said if I had doubts not to take it and he would see me again in a few Months time.

      I phoned the Company that manufacture this tablet and their research Doctor said to me that it has never been known for this tablet to cure any skin rashes.

      The tablet is for treating Depression,Manic depressives etc and the side effects are many. E.G. seizures,blurred vision,RASH,dizzy,confused,hallucination s etc etc

      I checked this tablet up on ****** and there are a lot of letters from people who said it causes people who are on it to commit suicide etc.

      Why would he prescribe medicine like that.

      Any comment would be appreciated before I have my next visit to him.

      #99; Tue, 18 Dec 2007 11:18:00 GMT
    • It seems that a lot of dermatologists and allergists like to try a drug like that on rashes. It is an SSRI and is an antidepressant like Paxil and Prozac, to name two. Apparently the doctors feel there is a possibility that you are stressed or anxious (about something other than the rash) and that is causing the rash. I understand because I have had the same thing you have, but for only a year and a half now. I have had 9 biopsies on different sites and even a CT scan for possible lymphoma. All are negative. But the rash stays. I have had brief episodes of relief with prednisone, multiple anti-histamines, and steroid shots. But it always comes back. And in different places. For me they tried Doxepin, but it only made me groggy.

      As I noted in my previous message, I cured the scrotum with ice and Elidel. I have stopped using topical steroids to prevent a reaction to them, and am working on various parts (arms, back) with ice and Elidel now to see if it works there as well as it did on the scrotum. But until someone can discover what is causing it, it will likely keep coming back.

      Oh well, it could be worse, as they say in Ireland.

      JL

      #100; Tue, 18 Dec 2007 11:19:00 GMT
    • choclit4u - can you advise what oral antibiotics you were on for the 2 weeks?

      and when you say 'go see your doctor and get a simple swab', do you mean a biopsy or something more simple?

      much appreciated :)

      jjjim

      #101; Tue, 18 Dec 2007 11:20:00 GMT
    • Hi everybody

      I've been following this thread for a while and have decided to add my experiences in case it's of help to anyone- I'll keep it as short as poss :)

      I started my scrotum problems 2 years ago when on a routine visit to my doc he gave me Lamisil cream when I mentioned a slight itch on my scrotum. Looking back I think this was probably just due to a very hot period of weather at the time - there was no sexual contact involved.

      Anyway my skin had an adverse reaction to this cream and became VERY red/itchy/burning.

      On seeing another doc I was given a total of 8 creams and 1 lot of antibiotics over 9 months - nothing helped.

      I was in agony and went to see a dermatologist who runs a "men's clinic" where he took a skin sample and various other tests were done which ruled out infection.

      He said he sees "several" cases similar to mine every year and they invariably start with a "reaction" to some form of irritant. This could be a new soap or shower gel - spilling something on that area - any number of things - in my case it was the Lamisil.

      So the initial complaint is "contact dermatitis" which then develops into "scrotal eczema".

      He said there is no cure for this but he was pretty sure he could ease the discomfort and it would eventually go away of its own accord but can take a very long time.

      I was given a steroid cream, chemical free soap substitute cream and a skin moisturiser - to use twice a day. After about a week things were much improved - most of the burning/itching was gone but I carried on with the cream wash and conditioner.

      So now after 2 years I have no discomfort but I do still have the redness most of the time - the dermatologist says it doesn't matter what colour it is as long as it's not giving any trouble :/ but as I said to him...it's not his scrotum.

      Be very careful what you put on this VERY SENSITIVE SKIN - it's very easy to make things much worse.

      Try to find someone who's a specialist in this field - not a GP who's just guessing.

      Best wishes - Robin

      #102; Tue, 18 Dec 2007 11:21:00 GMT
    • I was on Cephalexin (Keflex). My dermatologist suggested starting with a simple skin swab. If that was negative, then do a biopsy. Often the skin swab is sufficient. However, make sure you DON'T shower before your visit for maximum chance of the skin swab working.
      #103; Tue, 18 Dec 2007 11:22:00 GMT
    • Hi everybody

      On seeing another doc I was given a total of 8 creams and 1 lot of antibiotics over 9 months - nothing helped.

      So the initial complaint is "contact dermatitis" which then develops into "scrotal eczema".

      I was given a steroid cream, chemical free soap substitute cream and a skin moisturiser - to use twice a day. After about a week things were much improved - most of the burning/itching was gone but I carried on with the cream wash and conditioner.

      Try to find someone who's a specialist in this field - not a GP who's just guessing.

      Best wishes - Robin

      Robin, thanks for the post, the more info the better...any chance you could let us know which creams and soaps you used? (I think its okay to mention brand names on this forum, as you did with Lamisil)

      Also wondering, if anyone who has had any success with the herbal remedy proposed a few months ago

      Cheers

      Aleks

      #104; Tue, 18 Dec 2007 11:23:00 GMT
    • Robin, thanks for the post, the more info the better...any chance you could let us know which creams and soaps you used? (I think its okay to mention brand names on this forum, as you did with Lamisil)

      Hi Aleks

      The dermatologist prescribed:

      Cutivate

      Dermol cream (wash)

      Hydromol ointment (later swapped for Double Base moisturizing cream)

      #105; Tue, 18 Dec 2007 11:24:00 GMT
    • Hello

      I have had this problem for two months now, I can't imagine having to deal with it for years. I have been to my primary Doc two times and the Dermo two times.

      The Dermatologist claims the typical. Contact Dermatitis due to laundry detergent or soap. He didn't do any tests and he could tell from five feet away in less then 1 minute. He said this with certainty because of the location. I said but I wash all my clothes and they touch my skin also. The skin on the scrotum is much more sensitive, he said.

      My situation is strange to say the least. My scrotum turns red and is incredibly sensitive and shrivels up. This might last a minute or an hour. I can go almost all day without it and all of a sudden it's back. I tried wearing different types of underwear, using different lotions and washing in different soaps.

      Some friends say it's eczema but it doesn't itch or scale and it goes away in minutes. I get eczema on my hands in the winter and it is nothing like it.

      I am going to try the tea tree oil and lavender before I cut my scrotum off.

      Does any one have any other idea's?

      #106; Tue, 18 Dec 2007 11:25:00 GMT
    • Hi Aleks

      The dermatologist prescribed:

      Cutivate

      Dermol cream (wash)

      Hydromol ointment (later swapped for Double Base moisturizing cream)

      Thanks for the info Robin! I will try them out...shame my doc hasn't been as helpful.

      Cheers

      Aleks

      #107; Tue, 18 Dec 2007 11:26:00 GMT
    • Hello I have read all the Board, I have been with this problem since 3 months ago, but its also related with sudden pain and redness in the top of the pinus, Ive been in panic relating it to herpes, but im starting to think its not. Ive been at 2 SexHlthC, 3GP, and 1 Urologist, and they just dont get it.

      Is anyone like me?

      WHAT HAPPENED WITH THE NATURAL REMEDY?

      has anyone else had possitive results with it?

      Where can I get the ingredients?? Please dont leave the forum with out tellling us how you did.

      Please help me I want to give it a try.

      Does anyone knows if this problem migh have negative consecuenses on fertility??

      Thank you all.

      NAX

      #108; Tue, 18 Dec 2007 11:27:00 GMT
    • I have had this for about a year but I think I finally found something that is helping well. I have been to my doctor about 5 times and his diagnosis was jock itch. He prescribed a lamisil type of cream. After using that for about two months with no results he tried to prescribe some type of steroid which made things much worse. After no results with him I went to a dermo and diagnosed it as dermatitis. He prescribed two creams that I was to use morning and night. They were ertaczo (sertaconzole nitrate cream 2%) and Locoid (hydrocortisone butyrate .1%) Believe me less is more with this stuff. Don't put too much on to the point that you are moist. That just makes it worse. Also make sure you are staying dry down there. Dry off with a fan after every shower, then put on your creams and such. Moisture, friction, and heat are most of the problem with me. So I have been using Johnsons Baby Powder to absorb any access moisture and sweat. So after using these creams and using the baby powder I have been much improved. The itch is mostly gone. Redness has gotten much better also. As long as I keep dry down there I usually have no problems and my life has been more focused on more important things that a dam chronic itch. :)

      Hope this helps some of you. Good luck!

      #109; Tue, 18 Dec 2007 11:28:00 GMT
    • Aleksivele: Have you tried Robins remedy? Any one has have any progress with all the last recomendations of the last 3 months?? I tried the herval remedy with the ice or cold bottle and I dont know but one of them worked and healed a 70%, but then I was under a lot of stress because of studies and exams and it just suddenly came back, I am starting to think that stress it is related with the trigger of this thing!!! aahhh, any one agrees? Has any one had positive results lately? Dont forget about us please? If you are healed, please come back an give us your retro? Thanks and good luck!
      #110; Tue, 18 Dec 2007 11:29:00 GMT
    • Yesterday I went to the dermatologist, I think I have to share what happened, I have being 4 months with this problem.

      The doctor told me at first sight it is the RED SCROTUM SINDROME, it is chronic and unpredictible, nobody knows what causes it, and he told me it is not rare, but very difficult to treat, he told me that it is very posible to be related with stress, and I think it is, because it appeard for me in VERY VERY VERY stressfull time, 1 week ago I was getting much better and it appeard again because of a stress day in just a couple of hours. Someone else comented about haveing pain on the toes while having the problem, and its funny but I also do (right leg), the doctor told me its reasonable because the nerve that connects the skin of the scrotum its tha same of the leg. So...

      In conclusion he told me its common, but the hard thing is that when people go they never come back, because of the time it takes or lasts. So people change or perhaps acept to live with it. He told me is unpredictible, and there is possibilities of healing but after years it migh come back or not. At the end he gave me Minocycline Tablets 50mgs. 2 tablets a day during 6 weeks. He told me it was a long treatment and I needed to be patient, he told me it might work but might also not. So I allready started the treatment. Its an antibiotic for the skin, that affter using for a while it works as a desinflamatory. Im helping a LOOOOT with cold bags from a drugstore. While sitting. So good luck and please if anyone has any progress, dont forget to come back! Regards. Nax

      #111; Tue, 18 Dec 2007 11:30:00 GMT
    • Nax, I have been using Hydromol ointment and Dermol cream suggested by Robin. I didn't use the Cutivate as a family relative who is a doctor said it was very strong. (I haven't been back to see my own doctor about this, due to her having me down asa hypochondriac) Can't say they have helped notciably, but they may take a while to work. I have just started a new job in a foreign country after almost a year off, and am living in temporary accomodation and trying to find a place to live. This has been quite stressful and tiring and as you say, stress though maybe not the cause of this in all cases, certainly makes things worse - it has been pretty bad last week and a half

      My pain varies from tingling, to a constant nipping sensation to sharp bursts like someone is sticking a needle in my sack. I sometimes get sharp needle like pain in my buttocks and toes which makes me think, part of my problem is nerve related as well as a skin problem. Or maybe one problem is causing the other. Someone suggested it could be vascular i.e. too much blood flowing around down there, so I have even stopped jerking off going on 2 weeks now. My sack does appear to be more red now comapred to the dark brown it has been up until now, so I will carry on abstaining for a little longer to see if less activity down, and less blood flow or stimulation there has an effect. It'll be worth it if it works

      Sometimes, I can sit for hours and feel all is normal, then pretty soon it comes back on again...it does get you down.

      After my latest attempts are complete, if I still have the problem, I am gonna try the herbal remedy. Hope this helps.

      #112; Tue, 18 Dec 2007 11:31:00 GMT
    • alek, how are you doing? Did the herval remedy work? Any progress with you? The herval remedy in my case, didnt work, it just irritated the skin... I am so desperate about this!!! Please keep the retro if you found anything... I think Im very similar to your case! Regards. Nax
      #113; Tue, 18 Dec 2007 11:32:00 GMT
    • Hi Guys

      I have had this problem for years coming and going. Back in 1996 (when I was still at school and for from sexually active), I had a condition on my thighs where my scrotum made contact, but not on my scrotum. I remember walking with wet pants the whole day (summer holiday at the beach) and it became apparent after that. It got quite bad (itchy and flaky) and then I applied a Vitamin E cream (it was Golden Products, but that product was discontinued) which made it go away for years (5 or more). When it reappeared it was on the scrotum where the hair folicles are. My hair has also turned white (not the typical black pubic hair as around the rest of my genitals). Anyone have similar symptoms?

      My experience is that it comes back if I do not clean up right after doing sport. I also do a lot of swimming, which exposes me to a lot of bacteria typical to public pools. I think the important thing is to keep it dry!

      I had a theory about my underwear, as I used to wear briefs. The theory is that the elastic band might restric bloodflow to the scrotum and therefor deprive it of the good stuff the blood does. How do you guys sit during a normal working day? Small chair with legs close together causing scrotum to squeeze? To me it feels like the ventilation is not good enough down under. Leather chairs might make this worse as well? I am throwing around ideas, but nothing is anything conclusive as I still have the symptoms...

      #114; Tue, 18 Dec 2007 11:33:00 GMT
    • I have had this problem for a few months now and none of the creams or powders I have used, prescription or othewise have cured me.

      I also periodically get a sunburn type feeling on my parts of my arm. calves.

      backs of hands and feet etc.

      Neither ny personal physcian or dermatologist seem to be able to find the cause although they both agree that the nerves in my skin particularly behind my scrotum and around where my buttocks meet below the anus have been disturbed/disrupted.

      My dermatologist knows a fair bit about the syndrome and in fact is doing a paper on it because of the very limited information presently available.

      He has sucessfully treated three patients lately using the prescription drug Lryica for I think a period of about 8 weeks.

      This drug is used for diabetics (I am not one) to deal with the pain resulting from nerves damaged as a result of same.

      I will start using the drug Lryica in the next few days and will let you know in a month or so if I am making any progress.

      In addition I am attempting to make sure I don't do anything further to aggravate the situation so during the day I try best to keep as clean and dry as I can as well as avoiding sitting for extended periods.

      At night I use creams to try and keep the skin itself from having any problems.

      I am just new to this board today and would suggest we compile a list of what everyone with this problem has done to have successfully relieve their symptoms.

      #115; Tue, 18 Dec 2007 11:34:00 GMT
    • Benito, welcome to the board, please dont forget to come back if you have any success with your treatment. I want to tell you all that I have being useing the herval remedy for a week and it helps momentarely but it doesnt go away, Alek how are you doing?
      #116; Tue, 18 Dec 2007 11:35:00 GMT
    • I joined the forum and I never described my sintoms, sorry. My entire scrotum is red with mild to moderate burning sensation. I also have some small very mild patches of red skin on the ridge around the head of my penis which occassionally burn and also some times wrinkles. I have never had any blisters. I have 4 months with this symptoms and have never completely disappeared although they do occassionally subside somewhat for at most 1 to 3 days before coming back strong for as much as three weeks. Additional symptoms include periodic aching in buttocks and down back of legs as well as occassional pains in feet & toes. The tissue (below the skin) between my scrotum and rectum is generally sensitive and long periods of sitting become uncomfortable and can exacerbate the burning in my scrotum and head of penis as if putting pressure on the nerves...standing provides some immediate relief. Sex produces redness of penis and buring deep within the tissues behind the scrotum. It is not contagious because my wife is hasnt got any problems. The pain on te foot I am very shure its is related, because when it hurts most, also the foot does. This is my situation, I belive its related with the nervious sistem. Any one has exactly the same as me?
      #117; Tue, 18 Dec 2007 11:36:00 GMT
    • Nax, I am now back to using Canesten cream, which is an anti fungal cream. I have used it before, but not consistently and not for longer than a week. I have been told that you need to apply it 3 times a day for at least 2 weeks, possibly longer

      As I have said before, in my own particular case, I still don't think this is totally a skin condition. When the itching / nipping started, it was quickly followed by the development of rashes and raised lines on my thighs where my scrotum contacted them, like ring worm. I was actually happy about this because it made me think that this was purely a skin condition, which I could treat with creams. However, the redness and raised lines on my thighs went away on its own, but the itchy scrotum continues, 2 years down the line.

      Like Benito, I think there is some nerve damage involved with me. I have had itchiness / burning on my arms like him, but that went away. I have heard of the Lyrica medication, and think that this may help. I have had my blood sugar levels checked using a friend who is diabetic's blood monitor. I am not diabetic. I was on anti-depressants for a year, and I believe that these have been prescribed to some people to help alleviate pain. My itching started about 5 months after taking my last AD. I don't know if they were masking the condition while I was on them.

      I had a job in an office, desk based for 8 hours a day for 3 years when the itching started and I know that my posture was very poor - I tended to slide down in my chair such that most of my weight was on my tail bone / coccyx (spelling ?) When I slouch like that now when I am on a train for example and trying to get comfortable, my feet and buttocks get numb far too easily. This suggests to me that maybe something is not quite right nerve wise or blood flow wise in my lower spine around the tail bone. I also get occasions when my neck gets so stiff that hear a clickwhen I tilt it forward. But this may just be as a result of all the tension that this condition brings.

      Following the vascular line, I am trying to get a hold of some blood thinning medication and making sure that I drink lots of water - my hydration is generally poor. I read something about "sticky blood" on another forum. Maybe clutching at straws a bit, but I am desperate to fix this. I have this notion that maybe the blood flow to my groin and legs is not as good as it should be

      In summary, I am gonna use the cream for a month and try to maintain good posture at my desk. Drink lots of water and try blood thinning meds for a bit to see if that has any effect. In addition to this, I plan to have an MRI scan of my spine and neck just before Christmas to rule in / out nerve damage or spinal disc compression around my butt. After the Canesten cream is finished I may finally have a go at the herbal treatment while I wait for the MRI...I am trying to hit this thing on all fronts as it is affecting my quality of life. I will keep you posted. Good luck and keep the chin up

      #118; Tue, 18 Dec 2007 11:37:00 GMT
    • Good to see someone with a medical background takng an interest in this and raising the possibility of it having some nervous system origin, at least in some cases. There was a young guy in the news in Scotland a few months ago who got let off with possession of cannabis, because his doctor had diagnosed him as suffering from "scrotodynia", and he had been using it for pain relief. So there is recognition of this condition out there, but maybe not a lot of knowledge about it regarding cause or treatment. I did read recently though about a cream based on cannabis being developed / available for skin conditions.
      #119; Tue, 18 Dec 2007 11:38:00 GMT
    • I’m interested in hearing from anyone that had success in treating RSS (Red Scrotum Syndrome). In October of 2006 I had what I thought was a severe case of jock itch. It started out as a very slight burning in the scrotum, along with a biting feeling. Day after having intercourse I had a severe breakout which included a bright red scrotum and penis that was sensitive to the touch with peeling skin. I don’t believe it was sexually transmitted. My sexual partner has not changed and there is no indication that she has any symptoms. It progress and my scrotum and penis turning bright red with intense burning and pain .The groin area constantly feeling hot and damp, sitting was painful. At first I treated it with lamisil, but this only made it worse. I tried lotrimin then tinactin without success. I finally went to my Doctor, he diagnosed me with a yeast infection. I was given clotrimazole, betamethasone, and dipropionate cream. I proceeded to apply the cream for approximately 3 months with minor improvement. A total of 6 months went by before the Doctor told me I had Red Scrotum Syndrome. He proceeded to tell me that there is no cure for the condition. He told me to continue the cream and prescribed an antidepressant. After 2 weeks of this I figured I’m stuck with this condition for the rest of my life and stopped taking the medication.

      I started doing research on this condition. I found out there is little medical research on this condition. I don’t believe the medical community takes this condition seriously. Most of the research came from other individuals with this or similar conditions. First, I needed to find a way to control the constant burning and biting feeling. I came up with a homeopathic treatment using essential oils. The measurements are done with a dropper as follows, 200 drops of coconut oil, 50 drops of tree oil, 4 drops of rosemary oil, 8 drops of clove oil, 20 drops of oregano oil and 2 drops of cinnamon oil. These ingredients can be found at most health care stores. (Use with caution and test for a reaction on a very small area first.) The mixture will cause the effected area to turn bright red for the first week. It will also make your skin peel, this is normal. The Oils should be used no less than 3 times a day. Based on my research, it’s my opinion that this is not just a skin rash but possibly a yeast infection that produces a secondary staph infection or just a staph infection. My Doctor agreed to treat me for a staph infection and prescribe cephalexin for ten days. This seemed to eliminate the pain that I was experiencing. After ten days I started using ethyl alcohol 70% with Reclear AF (toe and fingernail antifungal solution, active ingredient is Clotrimazole. I would wipe my genitals with Ethyl alcohol and reclear three times a day and then the Oils before bed. I also used medicated powder after applying the oils or alcohol. Tried to wear loose clothing and no underwear at night. I don’t know for sure if it’s one of the aforementioned or the combination of all the treatments that has helped. Except for a small red patch on my scrotum the redness has disappeared. I not sure if the condition will clear completely. But I’m optimistic for the first time in a year.

      I hope this helps someone!! All I know is Red Scrotum Syndrome has ruined a year of my life.

      #120; Tue, 18 Dec 2007 11:39:00 GMT
    • FLY, thanks for your retro. My condition is 100% like yours, it also started after sexual intercourse (just married), but now im very confident is not an STD (my wife hasnt got any problems after 4 months). My sintoms are the same as yours thery started with a very strong outbrake and they have become milder but still VERY uncornftable, at the beggining I though it was Herpes, but I had Farmvir treatment for 2 weeks and it didnt go away (it only helped a little on the the pinus simptoms), and I also have some times some pain in my right leg foots. I think its is related but not shure. Also a small red patch comes out on the inner groin, but very ocasionaly. It might be related, but Im just not shure.

      Let me tell you a I did a treatement during 2 weeks with 150 drops of almond oil, mixed with 2 of oregano oil (very strong), and 5 of tea tree, and 5 of lavander. That treatement was strong!! but it just didnt work, my skin became more red and irritated, but at the end it was still there. I found your recomendation VERY STRONG, And then alcochol? WOOW I understand how you must be feeling about this... You look desperate!! Thanks for your retro, and please keep writing with your progress, I dont think I do it now, but who knows in the future!! IF ANYONE HAS A DISCOVERY OR A STORY OF PROGRESS TO SHARE, PLEASE DONT FORGET ABOUT US!. Thank you FLY and good luck all!!

      #121; Tue, 18 Dec 2007 11:40:00 GMT
    • The most distinctive characteristic of my case is that the redness has had the exact same boundary the entire time and the boundary follows the boundary of hair follicles EXACTLY. This is characteristic of some type of bacterial infection. Irritation would not have such a well defined boundary for so long and coincidentally follow the hair follicles so closely. Have others noticed this about their case? I have a theory about the type of infection that causes this, and luckily it is not contagious. Unluckily, it is a type of infection that would be extremely difficult to resolve with the medications currently available on the market.

      What is your theory?

      I have just started with this crap in the last 2 months. Reading many of the posts most of them could be written by me. I am 39, heavy set, white, generally healthy. I am leaning towards the yeast/candida type infection. I had a bout with prostatitis beginning mid august and was put on 30 days of levaquin. this stuff is a very strong antibiotic and made my body go nuts. Towards the last week of the levaquin this rash started. I also had a fungus on my face which cleared up with an anti fungal/steroid prescribed by a dermatologist, prior to by balls going nuclear. I have tried 2 anti fungals on my sack, one did nothing the one with miconizoyle inflamed the scrotum and put me in hell for 3 days. it finally calmed down to where it was bearable I went to my GP and he said it could be stress or in my head and gave me a sctipt for lotrimin with some steroid in it, after 3 applications - MAJOR FLARE UP. I am in hell again. My sack is hot, red, and its always tight, usually it relaxes when I am in pants... not now, its like I came out of ice water. If I pull on it it will stretch and stay that way for a short time, so maybe the nerve thing has some merit too?

      I have had red inflamed patches on either side of my sack and across the top of the base of the penis. When it flares up the whole sack is effected and goes red hot and itchy. Sometimes the perenium is also affected which is what I am dealing with today. I called the doc and left a message... something needs to be done.

      I also have bouts with sciatica from time to time, I am also enjoying that so maybe the nerve irritatin/compression theory has meritt? I dont know I just want this to go away! I ordered the essential oils mentioned earlier in this thread so that is next on my list.

      Are there any Docs on the board who can help to figure this out?

      #122; Tue, 18 Dec 2007 11:42:00 GMT
    • I have had red scrotum for 4 years and know cause is unknown. If steroid cream works is only temporary. The best relief I have found is to use Vermont Bag Balm and massage into scrotum once or twice a day and then use Creamy Desitin over the bag balm. If scrotum hairy, best to shave and keep hair short with foil type electric razor, for easier application. This has alleviated the pain and burning for over 2 years now, but if not used daily, the pain returns. Also wear only synthetic underwear to evaporate sweat, as damp or wet cotton underwear just irritates the condition. Suspect some of the posts here are not really red scrotum syndrome but other condtions. Found this combination of treatment after dermatologist told me no cure and just try various things and see what works. I suspect it is the 8 hydroxyquinilone in the Vermont bag balm that helps. Avoid Desitin that is not the Creamy variety as the powder in the regular Desitin causes irritation. Hope this helps someone else out there.:)
      #123; Tue, 18 Dec 2007 11:42:00 GMT
    • Sorry for the length, but I feel I need to share what I went through and am going through again with this as i am in my second round with this.

      The frst (10 years ago) lasted over a year. I went through the normal stuff with the GP, such as creams, lotions, anti biotics, yeast meds and so on. The one thing that helped during that period was getting perdnasome (Shots not pills) (not sure about spelling). It helps reduce inflamation. That along with high dose claratin in AM and vistaril (again spelling but it is a histamine blocker) at night to help sleep.

      I am fairly sure it is not yeast or infection as even a biopsy (yea it hurt) showed neither. Stress seems to increase the problem and overall I had itching all over my body due to high histamine production as a reaction to the red scrotum.

      I finally lucked on an older MD. He tried everythign again, and even sent me to the Mayo clinic. While waiting for the results he told me to try a tanning bed. 5 min 2x a week for 2 weeks and then 1 time a week for about 8 min. HE warned not to go longer a sunburned scrotum is not something I needed to add to the problems.

      This gave relief! Along with the anti histamines, cool showers, limited use of soap there (the skin is already dry so we should not allow it to get more dried out), and every night I put a warm face cloth over the area for 10 min reapeated 2X.

      The irritation went down, but not away fully, but it was better and I was able to live better.

      Give this a try, talk to your Doc and if they are not sympathetic and caring, find another one! One of the keys to gettting through this is a good support system and reducing stress.

      Also, I have to restate, the soaps are part of the cause. laundry and bath soaps dry and irritate, and as that is a very sensative area limit soap ittitanats, use laundry soap that is natural and rinses completely away. Even shampoo can irritate. Think about it, standing int he shower, the soap naturally runs down the body. I personally went to johnsons baby shampoo and soap.

      Next time I will share what the Mayo doc suggested.

      #124; Tue, 18 Dec 2007 11:44:00 GMT
    • Please share the Mayo results with the forum, dont forget! Good luck!

      Next time I will share what the Mayo doc suggested.

      #125; Tue, 18 Dec 2007 11:44:00 GMT
    • The recommendation was to try UV therapy or Grenz ray therapy. The Dr feels that this should help the skin heel. Grenz is not widely used in the US, but ther are a few places it can be done. The UV therapy is widly available at most larger dermatology pratices.
      #126; Tue, 18 Dec 2007 11:46:00 GMT
    • The recommendation was to try UV therapy or Grenz ray therapy. The Dr feels that this should help the skin heel. Grenz is not widely used in the US, but ther are a few places it can be done. The UV therapy is widly available at most larger dermatology pratices.

      Brian, did they gave you any explanation of what is it, and its causes?

      Please tell us about your progress once you have done the tratment, to see if it is worth it, im in Australia, but ill start finding about it.

      Is there any conplications or risks regarding fertility with this treatment?

      Thanks Brian and I wish you the best!!!

      Nax

      #127; Tue, 18 Dec 2007 11:47:00 GMT
    • I chose to go with Grenz.

      I was informed it is low risk. I recommend reserching it and discussing with your Dr. The treatment consists of 4 sessions 10 days apart.

      So far, the redness is going away. It is down to pink from deep red. The itching is much less and I am more comfortable. I was told that after the 4 treatments, it wil still take about 2 months for the full effect to be seen and felt so it is a long term process. Even if it does not cure it, it is certainly much more tolerable and I am starting to feel "normal" again.

      This may not be for everyone, but it seems to be doing something positive for me. Even if it does not cure it permanently, it cretainly will be better than it was.

      One rule I try to live by is "Never give up!" soI refuse to be told there is nothing that can be done.

      Good luck and I will post again in a couple of weeks and give an update.

      #128; Tue, 18 Dec 2007 11:48:00 GMT
    • Guys,

      Have been following thread for a little while and thought I would share my info

      I developed red scrotum and red penis head about two days after receiving unprotected oral sex from an unknown woman - this happened just over a year ago. - I was also in wet boardshorts and speedos for a whole day that weekend - so not sure which one caused it.

      I have been to lots of doctors and dermo's but they all tell me that it is in my head and there is no problem. I have had all the STI tests which came up negative. Some of the doctors gave me antifungal creams which did nothing

      Symptoms are -

      red head of penis especially after sex

      red scrotum which follows the hair folicles and is very prickly (not itchy) just very uncomfortable

      I tried the natural remedy with the J&J oil/teatree oil/lavender oil and oregano oil for 7 days

      The first month or so my balls were on fire and had pain in the end of my penis. The symptoms now appear to have gotten a little better but still no where near normal.

      My current sexual partner has no symptoms

      This has me baffled and basically have given up with the doctors

      Sorry for the long post

      #129; Tue, 18 Dec 2007 11:49:00 GMT
    • Hi all i am new to this forum and am at my wits end.

      Have been following thread for a little while and thought I would share my info

      I developed red scrotum and red penis head about 4 months ago

      Symptoms are -

      red head of penis especially after sex

      red scrotum which follows the hair folicles and is very prickly (not itchy) just very uncomfortable

      I tried the natural remedy with the J&J oil/teatree oil/lavender oil and oregano oil for 7 days

      The first month or so my balls were on fire and had pain in the end of my penis. The symptoms now appear to have gotten a little better but still no where near normal and i constantly feel the need to itch. My current sexual partner has no symptoms .

      Action taken so far.

      STD Checks all negative and recent.

      canestan, canestan HC and a load of steroid creams ranging from mild to strong. All they do is give temporary relief. prefer the tea tree and oil for relief.

      Just had my first refferal to the dermo and she took one look and diagnosed erythrasma, which is not going to go away without anti biotics. she has prescribed a weeks course of clarithomycin 2 x 250mg daily and use of doublebase moisteriser. i have one day left and havent notice any difference so far, but looking at this thread i have not seen this infection that we all seem to be suffering from named as such and think this may shed some light for others.

      #130; Tue, 18 Dec 2007 11:50:00 GMT
    • I chose to go with Grenz.

      I was informed it is low risk. I recommend reserching it and discussing with your Dr. The treatment consists of 4 sessions 10 days apart.

      So far, the redness is going away. It is down to pink from deep red. The itching is much less and I am more comfortable. I was told that after the 4 treatments, it wil still take about 2 months for the full effect to be seen and felt so it is a long term process. Even if it does not cure it, it is certainly much more tolerable and I am starting to feel "normal" again.

      This may not be for everyone, but it seems to be doing something positive for me. Even if it does not cure it permanently, it cretainly will be better than it was.

      One rule I try to live by is "Never give up!" soI refuse to be told there is nothing that can be done.

      Good luck and I will post again in a couple of weeks and give an update.

      Brian it is good news!! Please keep in touch with your progress! I will be following you!

      DID THEY TOLD YOU ANYTHING ABOUT FERTILITY WITH THIS PROCESS?

      Thanks and good luck!

      #131; Tue, 18 Dec 2007 11:51:00 GMT
    • Hey Nax,

      Still looking real good. In fact this AM, no red at all and no itching / buring. Thank god for a doctor that actually cared. For fertility, I asked and he said that it is such low level (classified as "soft") there was minimal risk, though in my situation, I already have kids and had a vasectomy years ago so I was not concerned. There has also been no impact on performance so no worries there. Though you should verify with your MD.

      I finally feel like this is beatable.

      #132; Tue, 18 Dec 2007 11:52:00 GMT
    • Thank you Brian, do you have any information from the Mayo clinic, of what is your diagnositic or sickness after all? And what causes it or produces it or how it works? Im concernd, becauses I have heard Mayo it is a very prestigeus clinic. Thanks. Nax
      #133; Tue, 18 Dec 2007 11:53:00 GMT
    • OK Guys, here is some interesting info....

      I posted my situation before so you can read it but its no different from most of you. Since then, I ended up with a horrible fungal infection that went way beyond the scrotal problem, it was half way down my thighs, down my ***, it was unbelievable! I ended up being put on an oral antifungal for 2 weeks - Diflucan (after 3 different topical creams). After about a week on the Diflucan it was day and night. I was about 90% better thinking this was it. A few days later... the scrotal thing started back up, talk about disappointing!!!!! Burning, itching, scaly patches... Ughhh I was so depressed.

      I changed soap to Dove for hyper sensative skin, started using Hypoallergenic laundry soap, stopped using deoderants, colognes, body washes. I wash 2X a day in cool water, not cold, but not warm either. Seems to relieve the heat for a while.

      I started doing research and found LOTS of information on Scrotal Eczema from a traditional chinese medicine (TCM) perspective. They actually identify numerous kinds of eczema, each with specific causes and treatments, unlike the 3 dermatologists that just wanted to put steroids on me and told me it was in my head. By the way, regular use of steroid creams can cause erythrasma, be careful. They can also mask a fungal infection.

      In traditional texts they attribute this condition to excess liver heat and an increase in dampness in the body. Obviously this is prime condidtions (warm and damp) for fungal/yeast infections to prosper, Lucky Me!!!

      Other symptoms include red eyes, red skin on the face/neck, whitish/yellowish tongue, thirst, very yellow urine, and of course feeling unusually warm down south. This is treated with herbs and decoctions. Very treatable. I have been educating myself and also set an appointment with a certified TCm doctor who also does accupuncture. I see her on Monday. What I have done to date is this...

      I went on a parasite/yeast clearing program for 30 days using herbs and teas. I dropped 14 pounds by the way. Last night I did a liver/gall bladder cleanse which resulted in an unbelievable number of green "stones" being ejected from my liver/gall bladder. I was shocked, it had to be over 100 of them. I have to say that today my body doesnt feel hot down south for the first time in months and the burning/itching is 90%+ less than it was earlier this week. I think I am definately on the right track here. I'll update as and when things change for better or worse, in the mean time do some research or let me know if you want more info on what I did/used. it cant hurt, and you might get some relief.

      Good luck,

      Rick

      #134; Tue, 18 Dec 2007 11:54:00 GMT
    • Its not the solution but it helps A LOT!! This will provide temporal realeaf of up to 80% everyday while doing it and finding a real solution. It has worked on my an I have been able to do my life almost normal again and with out being thinking on it all day! Buy Eucerin Calming Itch Relief Treatment Cream (a very mild and easy to get cream (no prespcriptions)) buy it through internet also. Also change your underwear to some thight undies (I never liked them, I always used boxers), and put johnson baby powder after applying the cream on your testcles and over the undies. It really has helped for me a lot. While looking for a real solution. I hope it helps. Good luck everyone, and dont forget to come back if you find any real solution! Nax
      #135; Tue, 18 Dec 2007 11:55:00 GMT
    • brian, I did a search on Grenz ray therapy. No one does it. Are you getting this treatment in Florida? If so, what is contact information. This would be worth the trip if this really resolves the problem.
      #136; Tue, 18 Dec 2007 11:56:00 GMT
    • hey jondoe330 how is your treatment travelling

      did you get any results

      QUOTED

      Just had my first refferal to the dermo and she took one look and diagnosed erythrasma, which is not going to go away without anti biotics. she has prescribed a weeks course of clarithomycin 2 x 250mg daily and use of doublebase moisteriser. i have one day left and havent notice any difference so far, but looking at this thread i have not seen this infection that we all seem to be suffering from named as such and think this may shed some light for others.[/QUOTE]

      #137; Tue, 18 Dec 2007 11:57:00 GMT
    • Hello again

      Well I have had this problem for six months now. It started out as jock itch, thats what I thought and treated it as. When it didn't respond I went to the doctor and started using prescription anti fungals. After four dermatologists and three doctors, it's worse then ever. The latest conclusion is it's eczema. I am 43 years old and otherwise in perfect health. I never had skin problems and now I feel like this is destroying my life. The rash has gone down both legs and almost up to my navel. I have tried cortisone creams, oral steroids, anti fungals, anti yeast and diflucan. I changed my diet started taking essential oils and vitamins.

      I just don't know what to do. I can't sleep it itches like hell and I try not to scratch, but it won't go away. I am going to start taking anxiety pills to try to rid some of the stress. I thought I was doing great I ate healthy didn't smoke or drink. I exorcised three times a week. I can hardly walk some days, I told my wife that if I can't find a way to treat this, I will have to find another job. I am in construction and currently am doing very well. I know I will not be able to make the same in another job. But the doctors can't seem to do anything.

      The doctor said it is common for men to get eczema on their scrotum, just learn to deal with it. I wish I could give it to him!

      #138; Tue, 18 Dec 2007 11:58:00 GMT
    • Hi Guys,

      I have lots to report so here goes.

      Firstly my problem is still here and my testes have begun to hurt a lot more.

      I have had STi tests including HIV all of which are negative(just to rule out)

      My GP is back at work now and has been very helpful. she has been away for a few months so this is her first eyes on my problem.

      on examination of my scrotum she diagnosed epydidimis(ex spelling) which she tells me is infection/swelling of the bit that attaches to the testes.

      My GP referred me to accident & emergency straight away with suspected testicluar torsion, she knows this is unlikely dew to the time frame of 5 months but knew it would get me to see the duty urologist and get some ultrasound ASAP. I spent 8 hours in hospital yesterday and had my boys examined by just about everyone lol. The senior urologist took a good feel and described my sac as a bag of worms and suspected cysts and varicoles(varicose veins). ultrasound revealed exactly the same as he had said.

      I have been discharged from hospital and prescribed a 2 x 500mg a day of ciproflaxacin, a strong antibiotic which targets the genital area. My GP confirmed the cysts/veins have caused some infection down there which

      has flared everything else up. Personally i dont think my symptoms (red sac and itching) are a dermo problem but a nerve problem. I get the odd sharp pain in my toes and my phubes feel like theyre on fire, but i think this is because the varicose veins are so dilated they are compressing a nerve which is giving me pain and itching.

      To date Johnsons prickly heat talc gives some relief and tea tree oil mix with oil. my balls aint so red since starting antibiotics. however this has been a chronic infection and will take a long time to fight with anti biotics.

      I have been very reassured by my gp and the NHS staff at my local hospice. They really pulled out the stops for me and i am grateful. only time will see if the pills will fight off infection for me. The urologist will see me in 4 months to determine whether or not to operate and tie off the varicose veins.

      incidently the cysts and veins are present in some 30% of people and present no syptoms most of the time, however the redness and itching is a mystery to me....

      #139; Tue, 18 Dec 2007 11:59:00 GMT
    • Hello

      How many here have been to a dermatologist and were told it's eczema. I went to four different dermatologists. Three from the same office. when they first looked they said jock itch then it was yeast then they blamed my detergents and soaps. Finally they came up with eczema. That seems to be a coverall for any skin problem. While researching eczema I found that it primarily affects children and 10 to 15 percent of adults including the children that had it their whole life. When you read on they claim that adult onset is somewhere around two percent. The majority of adults get it behind there joints or on there hands or face. Their are a lot of guys here with exactly the same problem. I guess they don't want to add us to the mix because it's in a bad place. I tell people that it feels like my underwear is full of tacks. When it gets tight and red it hurts bad. One of the things that helps a little is Bag Balm. No pun intended, it's from Vermont and it's used on cow udders when they get irritated. The product feels like Vaseline but has some additional properties that sooth the skin.

      Has anyone here had it go into remission?

      #140; Tue, 18 Dec 2007 12:00:00 GMT
    • Hello All

      I have to tell you guys. This is not a mysterious disease that you caught from someone. I noticed that most of you were told it's eczema. That is what it is.

      Those of you who noticed that it comes when you are stressed and clears up some times for no reason, need to look up eczema. All of you need to go to an allergist and have them do a patch test. I will guarantee that you fail. Your body is reacting to something that you might not ever find or ever be able to do anything about. What if you are allergic to a substance that you can't control, the only thing you can do is use moisturizers and steroids. Some of you will find what you are allergic to and most will experience periods of remission. You will think you found it and then it is back.

      Welcome to the horrible world of eczema. Don't you wish it was just Herpes. I spent the last 30 years with this. Sometimes it spreads to other body parts but it will never go away. Learn to live with it, or it will destroy you.

      #141; Tue, 18 Dec 2007 12:01:00 GMT
    • I am not so sure it is eczema, as the redness I have never clears or goes away, and it exactly follows the hair folicles of my scrotum.

      Head of penis is red and stays the same also

      Never on my inner thighs

      There are no blotches or bumps, skin is just red and feels prickly - feels like the area has been shaven a week or two ago - same prickly feeling

      Nax - are you the same as this

      #142; Tue, 18 Dec 2007 12:02:00 GMT
    • I finally have some releif... after my 5th derm finally found a guy who knows what hes talking about. Do a search for

      Lichen simplex chronicus

      Its probably your issue guys. It can take up to 6 months to go away, its a form or neuro dermatitis. You have to STOP SCRATCHING. its hard but in a week you'll see a difference.

      Its fairly common in athletes from skin rubbing together in the groin, armpits, etc. There is a product called aquaphor that moisturizes and lubricates, it helps a lot. Its marketed at athletes, kind o flike bodyglide. Do a search for it yuo can buy it without a script

      #143; Tue, 18 Dec 2007 12:03:00 GMT
    • Did you have a outside affair when you had your scrotum licked? If you did, it actually would be consistent with feeling guilty and that can cause a neuro dermatitis, which lichen simples is a form of. We all like to think we can handle cheating but not all of us can. Also if youre picking at yourself a lot youre only making it worse, you need to stop scratching, rubbing, etc.

      If you are really worried about it being contagious, GO SEE A DOCTOR. He can do simple blood tests to rule out an infection, herpes, or HIV, or even take a biopsy for staph or strep. They can also do a check in the office for fungus.

      Your mind is messing with your head now, youre freaking out and you need to calm down and be ratinal and objective. If its only on your sack and not on your groin, upper thighs, or penis, its probably a form of dermatitis or eczema and is probably not contagious, but get it checked out and then you'll know.

      If it was an infection, it would likely spread and you would end up with sores, pus, oozing, something unplesant like that. Even an infection has an incubation period of several days. The fact that its on your sack and your sack alone is a good sign (from one perspective at least) Oral contact would limit the type of STD you could get, most of which have symptoms that effect the penis, sores, oozing dripping, burning when you pee, etc. Herpes is possibile to get through oral, you would get painful skin eruptions but not the day after. HIV is also possible but unlikely and it wouldnt show symptoms the next day and wouldnt give you the sack problem.

      Go see a doctor and get tested, you'll feel better and destress a bit.

      #144; Tue, 18 Dec 2007 12:04:00 GMT
    • Due to the very high number of responses and age of original post, this thread is being closed.

      Please feel free to start a new thread on this topic and please start individual threads to ask your own questions.

      Thanks.

      #145; Tue, 18 Dec 2007 12:05:00 GMT